Community Forum Archive

The Epilepsy Community Forums are closed, and the information is archived. The content in this section may not be current or apply to all situations. In addition, forum questions and responses include information and content that has been generated by epilepsy community members. This content is not moderated. The information on these pages should not be substituted for medical advice from a healthcare provider. Experiences with epilepsy can vary greatly on an individual basis. Please contact your doctor or medical team if you have any questions about your situation. For more information, learn about epilepsy or visit our resources section.

Hopes to be seizure free

Tue, 09/19/2017 - 21:56
Hi all, my names gabi I live in Boca Raton Florida and attend FAU. I'm 23 and have been living with epilepsy since I was eight. I was originally diagnosed with complex partial seizures. I had my first seizure at the Miami zoo I wouldn't get out of the way of cars and just stared blankety into space not being able to speak and not listening to my moms voice. I snapPed out of it and we went on with the day. Afterwards I kept having these staring spells so I went to the hospital and was diagnosed. When I was young I took depakote and my seizures were under control, I was a flyer on the cheerleading team I lived a fairly normal life. Once I was around 16 I had my first grand mal seizure in my sleep in front of my terrified best friend. After that I went on basically every medicine they have on the market and I continue to have multiple staring seizures a day. These seizures feel like the world I zooming out and I become panicked because I don't want people to notice. I shake and twitch but I don't fall down. These seizures only last 5-8 seconds but they feel much longer. I have been ashamed of this disorder my whole life, I never tell anyone about my epilepsy. Even if I have a seizure I lie and say I just had a panic attack. It's hard to explain to someone what's wrong because afterwards I'm embarrassed and don't want to explain myself to a person who doesn't understand and might judge me. I have bottled in all my feelings my whole life never sharing the horror stories of having seizures in front of my class for a presentation, seizures during sex, during dates, work, roller coasters you name it Iv had a seizure there. This is probably so long because I never talk about my epilepsy. I'm now realizing as an adult woman that holding back these feelings have caused me a lot of pain and I want to talk to others and hear their stories as well. i no longer want this disorder to hold me back I want to be an active member in volunteering and talking to people about my story. i hope to maybe inspire young kids with epilepsy and adults too that they shouldn't be ashamed. I'm trying to find an i person support group to talk to other people with epilepsy. Does anyone know of something in south Florida?

Comments

CBD! Look up some

Submitted by kshroads on Sat, 2017-10-14 - 15:43
CBD! Look up some testimonials on youtube of CBD and it's help with those having seizures, its incredible. I work with a company who's trying to spread the word so anyone can use it to help change their lives. Ill attach a link below - but please research CBD's effects on seizures so you can see for yourself how amazing it is. It's completely natural / non addictive / non psychoactive/ helps with just about everything in the human body. Were on the forefront of CBD research and so far the results are INCREDIBLE. Heres a link to check out a list of our products (I suggest trying the tinctures) - I am here to help! If you know of anyone who could benefit from this information - please copy this link to them so they can get some potential relief from their epilepsy. Thankyou - I wish everyone the best. http://arenalife.com?afmc=23&utm_campaign=23&utm_source=leaddyno&utm_medium=affiliate

Sign Up for Emails

Stay up to date with the latest epilepsy news, stories from the community, and more.