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Hopes to be seizure free

Tue, 09/19/2017 - 21:56
Hi all, my names gabi I live in Boca Raton Florida and attend FAU. I'm 23 and have been living with epilepsy since I was eight. I was originally diagnosed with complex partial seizures. I had my first seizure at the Miami zoo I wouldn't get out of the way of cars and just stared blankety into space not being able to speak and not listening to my moms voice. I snapPed out of it and we went on with the day. Afterwards I kept having these staring spells so I went to the hospital and was diagnosed. When I was young I took depakote and my seizures were under control, I was a flyer on the cheerleading team I lived a fairly normal life. Once I was around 16 I had my first grand mal seizure in my sleep in front of my terrified best friend. After that I went on basically every medicine they have on the market and I continue to have multiple staring seizures a day. These seizures feel like the world I zooming out and I become panicked because I don't want people to notice. I shake and twitch but I don't fall down. These seizures only last 5-8 seconds but they feel much longer. I have been ashamed of this disorder my whole life, I never tell anyone about my epilepsy. Even if I have a seizure I lie and say I just had a panic attack. It's hard to explain to someone what's wrong because afterwards I'm embarrassed and don't want to explain myself to a person who doesn't understand and might judge me. I have bottled in all my feelings my whole life never sharing the horror stories of having seizures in front of my class for a presentation, seizures during sex, during dates, work, roller coasters you name it Iv had a seizure there. This is probably so long because I never talk about my epilepsy. I'm now realizing as an adult woman that holding back these feelings have caused me a lot of pain and I want to talk to others and hear their stories as well. i no longer want this disorder to hold me back I want to be an active member in volunteering and talking to people about my story. i hope to maybe inspire young kids with epilepsy and adults too that they shouldn't be ashamed. I'm trying to find an i person support group to talk to other people with epilepsy. Does anyone know of something in south Florida?

Comments

My wife has had it. It helped

Submitted by Martin_59ce95a6ea9df on Fri, 2017-09-29 - 16:08
My wife has had it. It helped much more than we believed. It won't stop the seizures but it will lesson them and possibly the degree of seizure. This is a very expensive surgery. It will leave a scar on your chest and your voice will change often. You may also choke on liquids when you drink and it goes off. You will have to replace the battery every 5 years or whenever it dies, hence reopening the scar. This was our experience. So you may experience something better. I highly suggest you research charlotte's web cbd oil or elixinol cbd oil.

Check out charlotte's web cbd

Submitted by Martin_59ce95a6ea9df on Fri, 2017-09-29 - 16:10
Check out charlotte's web cbd oil or elixinol. Posted up my wife's story. It's expensive but hey, it works.

My wife has had it. It helped

Submitted by Martin_59ce95a6ea9df on Fri, 2017-09-29 - 16:10
My wife has had it. It helped much more than we believed. It won't stop the seizures but it will lesson them and possibly the degree of seizure. This is a very expensive surgery. It will leave a scar on your chest and your voice will change often. You may also choke on liquids when you drink and it goes off. You will have to replace the battery every 5 years or whenever it dies, hence reopening the scar. This was our experience. So you may experience something better. I highly suggest you research charlotte's web cbd oil or elixinol cbd oil.

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