Community Forum Archive

The Epilepsy Community Forums are closed, and the information is archived. The content in this section may not be current or apply to all situations. In addition, forum questions and responses include information and content that has been generated by epilepsy community members. This content is not moderated. The information on these pages should not be substituted for medical advice from a healthcare provider. Experiences with epilepsy can vary greatly on an individual basis. Please contact your doctor or medical team if you have any questions about your situation. For more information, learn about epilepsy or visit our resources section.

Topic: Parents & Caregivers

Feeling Concerned

04/2017 | 8 Comments

Feeling overwhelmed with emotion. My daughter had another seizure 2nd one this morning. Really wish I could make this better for her. We have a trip...
Toddler with Benign Rolandic Epilepsy

04/2017 | 5 Comments

My daughter will be turning 3 this week. She was diagnosed with Benign Rolandic Epilepsy. The neurologist was very confident about the diagnosis based...
New to Forum

04/2017 | 1 Comments

Hello. I am new to this forum. My daughter is 13 years old. She had her 1st seizure in Nov. 2016. We also found that she was having absence seizures...
Undiagnosed - need advice re symptoms

03/2017 | 2 Comments

Hi, this may not be the right place as we don't know if my daughter has epilepsy or not - but hopefully someone might recognise the symptoms from...
New here - Help with my sons schooling

03/2017 | 8 Comments

My son is 15, he began having seizure at the age of 14 and has only had clonic tonic aka grand Mal seizures since the beginning. My sons neurologist...
New here- advice?

03/2017 | 5 Comments

I'm going to try to keep this short... my daughter is 7. At 5 she was diagnosed with Benign Rolandic Epilepsy. Just this week we did an at home EEG...
Post Seizures

03/2017 | 1 Comments

I have a friend who has seizures and it's tough to see her post seizure. Her balance is off and she cannot drive for a certain amount of time. I feel...
Can lots of meds affect immune system?

03/2017 | 1 Comments

My 16 year old daughter is on Keppra, Zonegran and lamotrigine. She just started the Lamotrigine two weeks ago. In the past two months her Keppra was...
New to this forum and need some help

03/2017 | 13 Comments

Hello, I am brand new here and in need of some help. Please bear with my lengthy post. My 16-year-old daughter was diagnosed with epilepsy this week...
Four year old with seizures

03/2017 | 3 Comments

I am new to this site and honestly new to a blog. My wife has been having seizures for almost 13 years now and we have learned to adapt. She has been...
Seizures with flying

03/2017 | 4 Comments

My daughter, at age 10, had seizures the entire flight from Texas to California. Here we are 4 years later and I am terrified to get back on a plane...
College student going off med

03/2017 | 5 Comments

My twenty year old daughter has been seizure free for many years. At almost every yearly Neuro visit, they have offered her the option of weaning off...
Absence/myoclonic seizures and wetting

02/2017 | 0 Comments

My 6-yr-old had a bullying situation at school, and developed a lot of anxious behaviors, including wetting himself. We changed some circumstances...

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