Community Forum Archive

The Epilepsy Community Forums are closed, and the information is archived. The content in this section may not be current or apply to all situations. In addition, forum questions and responses include information and content that has been generated by epilepsy community members. This content is not moderated. The information on these pages should not be substituted for medical advice from a healthcare provider. Experiences with epilepsy can vary greatly on an individual basis. Please contact your doctor or medical team if you have any questions about your situation. For more information, learn about epilepsy or visit our resources section.

Topic: Parents & Caregivers

adding cbd oil

10/2016 | 1 Comments

my son who has grande mal seizures is on 30 mg of onfi..it makes him groggy and depressed > he is also on a small amount of lamictal. He is 21 years...
Acupuncture

10/2016 | 1 Comments

Hi there, Has anyone tried acupuncture for the treatment of epilepsy? I have a five year old with absence and myoclonic seizures currently taking five...
New on Kepra

10/2016 | 0 Comments

Hello, my 9 year old has had 3 seizures since august all about 4 weeks apart. Its completely new as there is no family history, she doesn't have any...
Eeg question for four year old

10/2016 | 2 Comments

My daughter had her first big seizure a month ago. Yesterday she had an eeg to help us try to determine what was going on. During the eeg she was...
Want to help my brother

09/2016 | 0 Comments

Hi. My brother has epilepsy, and I saw everything he was going through when he was having seizures. I'm trying to design a product to increase safety...
JME and Algebra?

09/2016 | 2 Comments

My daughter is 16 years old and she was diagnosed with Juvenile Myoclonic Epilepsy almost one year ago. She is taking Keppra. She had one grand mal...
Falling during seizures :(

09/2016 | 4 Comments

Hello, I have a 12 year old daughter who was diagnosed 2 years ago with Absence Juvenile Epilepsy. She has tried 7 different medications over the past...
EEG Report

09/2016 | 0 Comments

My daughter's neurologist said she was having generalized spike and wave discharges but not seizures on the EEG. She has a history of absence seizures...
Med issues?

09/2016 | 3 Comments

Hi everyone. So my son doesn't have an official diagnosis as of yet but the doctors seem headed that way. So yesterday he had a very bad migraine and...
Feeling Lost

09/2016 | 2 Comments

ok so almost a year ago in October I found out my oldest who was 8 now 9 was having absence seizures. In November of last year I then found out that...
I feel REALLY lost. Need advice please!

09/2016 | 1 Comments

Hello, I have written here before but every time I make a account it say's password wrong/email don't exist so sorry If I don't reply but I am reading...
"Earthquake" in the brain???

09/2016 | 1 Comments

My 11 yr old son says that he feels like an earthquake is in his brain and that he feels like his brain is "playing tricks on him" when he has a...
heavy metal chelation

08/2016 | 1 Comments

Hello First time posting,I have a 4 year old boy that started having SZ. 3 years ago. He has been drug resistance ,so far we have tried over 10 meds...
Be Strong!

08/2016 | 0 Comments

My mom rocks! I had a rough time in high school when I was seizing often. I almost gave up. Here's our story, and a message to parents and caregivers...
4 Year old First 4 to 5 minute seizure!

08/2016 | 0 Comments

My son is 4, Not exactly sure what type of seizure he has either Atypical Absent mixed with complex partial? They are still figuring it out. He has...
After School Programs

08/2016 | 0 Comments

Good Afternoon - My daughter is 5 years old and was diagnosed with myoclonic epliepsy in March. She takes Keppra, which makes her aggressive and...
Recognizing seizures in toddler

08/2016 | 1 Comments

My daughter is almost two. She was born with a grade 3 IVH (intraventricular hemorrhage). Her neurosurgeon said that seizures would be possible, but...

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