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Worried about my son
Wed, 10/24/2018 - 13:08Topic: Parents & Caregivers
My 8 year old son was diagnosed with epilepsy at age 2. He has nocturnal epilepsy. But has been doing well. His teacher called yesterday saying he has not been acting him self the last two days, not being bad, just strange. Like standing across the room and the teach has to remind him of where his seat is. And at home he has been very emotional, crying thinking I dont love him if I tell him no. Then last night he said "can I have some sa-a-a" and proceed to try to say the word cereal for the next 2 minutes. He has good speech this should be an issue.i called the neur but they cant see him for 10 days. Has anyone experienced things like this? Do you think its partial siezures?
If he has nocturnal epilepsy,
Submitted by Amy Jo on Thu, 2018-10-25 - 11:50
If he has nocturnal epilepsy, I would think they'd need at least an overnight EEG instead of a short EEG. Short EEGs have their place but are by no means sufficient. Our insurance takes weeks to approve an EEG and our hospital group schedules them out months in advance. So you will have to start the ball rolling on asking for him to be (re)evaluated. It's worth it even if it isn't epilepsy directly but some comorbid or separate condition. Docs don't often talk about the issues that are associated with epilepsy (i.e. comorbid) but there are some associated with certain nocturnal epilepsies. Either way, it deserves a systematic plan to determine what's going on and the neurologist is the most helpful person to start with.