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Will they ever stop?

Tue, 03/14/2006 - 07:30
Hi, My daughter was diagnosed with complex partial siezures & absence siezures at the age of 5. She just turned 11 the other day. I don't know if anyone will be able to help me here since my daughter has a very long history of other medical problems as well. She was born with a blood disorder which caused her to undergo about 40 blood transfusions over the span of 10 months. At the age of 14 mo. the doctors removed her spleen to alleviate the severe anemia she was suffering. This miraculously cured the anemia and she started to finally gain weight and catch up with her peers. However she was also born with an atrial septal defect ( hole in her heart) wich eventually led to a full blown stroke just weeks after her 2nd birthday. So we taught her to walk , talk etc. everything all over again. She recieves PT,OT and Speech therapy to help with partial paralysis the stroke caused. At age 5 she was diagnosed with the siezures and the meds began. She has been on Depakote sprinkle since age 5 added Tegretol at age 7. Then diagnosed with ADHD so Adderall XR was added to the mix. At age 10 the siezures started comming more frequently again so we under went another EEG to find that the left side of her brain at that time was in an almost constant state of partial siezures wich occasionally (3-4 times per day)generalize and would litterally spin her in circles. The neurologist gradually added lamictal to the mix and now with 3 anti convulsant drugs she is still having siezure activity and we will again be at the neurologist soon if increasing the Lamictal doesn't start to cnntrol them. I don't know if any of you are dealing with multiple medical issues or just siezures, but I would like to chat with anyone who might be able to help. Thanks for reading, A Hopefull Mom

Comments

Re: Re: Re: Re: Will they ever stop?

Submitted by jennamay on Fri, 2006-03-17 - 12:29
For more information regarding VNS you can also go to: www.epilepsy.com/epilepsy/vns.html www.cyberonics.com Epilepsy.com Editor

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