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Sometimes I feel drained, Do you?

Wed, 12/28/2005 - 20:41
I'm the mother of a child who has battled seizures since she was 10 months old. At first I didn't noticed the signs of a seizure oncoming. But as time moves on & the older she gets, it seems like her seizures have gotten worst. We have tried several different types of medications but none really helped her. She almost lost her life back in 1999 due to a bad reaction to one of the medications she was on. My daughter cannot speak for herself but she does have a way of communicating with me when she wants something. "I am her voice" & I do speak loud. But...there are times when I feel like there is no hope or chance that she will get better. The doctors say that she is not a match for surgery, yet we've tried a total of 7 different medications and NONE have helped. We tried the Ketogenic diet but that didn't work all to well with her body so we had to stop that. We've tried ACTH, amoug others yet nothing. I wish I could erase it all together because I hate to see her have them, they scare me, they make me very nervous. I worry a lot..:( I guess the reason why I'm posting this is because I feel alone out here. I get depressed thinking about it and I hurt on a daily basis. To put it plain and simple "I'm scared"

Comments

sorry posted twice

Submitted by jennifer28 on Thu, 2006-01-26 - 19:16
sorry posted twice

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