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Seizures Without Explanation

Fri, 01/26/2018 - 13:39
My son had his first seizure at 18. Just out of the clear blue. Labs and scans were done, everything comes back normal. EEG was normal. The doctor didn't just throw my son a meds after one seizure. Which I was happy with this decision. A year of quiet and then it starts up again. Now they've increased and started happening in his sleep. Only happens at night or a little bit after waking. However, they have progressed into first myoclonic seizures followed by tonic- clonic seizures. He is 22 now. We saw a Neurologist for the first time last year. He quickly diagnosed my son with JME because of the age of onset, muscle jerks and so on. I feel this diagnosis was rushed. We are on anti-seizure meds now. Recently tried to wean from one med to another it sent him into a seizure. I've decided to further investigate this mysterious attack on my son. It's so difficult to watch someone go through this.

Comments

You are your child's best

Submitted by ladataylor@yahoo.com on Fri, 2018-04-20 - 13:59
You are your child's best advocate. So, investigate it, see if you can help him figure out these issues, see another neurologist, if possible one who specializes in epilepsy. But, I'd make sure to follow the Dr's advice. This is one area where expertise is definitely needed. Our Dr advised, and we've seen it to be true, that every seizure leads to more seizures so getting it under control is paramount and it sounds like he definitely needs to be on medicine. Best wishes to you and your son! Laura

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