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Seizure Helmets & School - Need some advice! Please!

Mon, 09/11/2006 - 21:08
My son will be 8 soon. He is in an IEP class with 6 kids at a mainstream Elementary school. Normally, his seizures last anywhere from 2-15 seconds, 1 to 5 times a day, he does not usually get hurt from these seizures. The ones that worry me are the drop seizures. They started when his doctor switched the Tegretol to Trileptal. He had never had a drop seizure before then, in 5 years since he had epilepsy. (He is off the Trileptal now, but still has drop seizures occasionally) Drop seizures do more than just make him fall to the ground suddenly, - I swear they literally slam his head to the floor. He broke his nose twice from this in the past year. For the past few months, these have been under control (they happen infrequently, thankfully, but cause severe injuries - if not bloody noses, then big gooseggs). Today, after several months of no injuries, he had another one - from the other room, I heard the BANG of his head when he hit the carpet. He cried for 15 minutes, and now has a lovely bruise. I know the school wants him to wear a helmet, because he broke his nose there in March. His father does not want him to wear one because he knows the kids will make fun of him. I am torn in between. I am terrified he will break his nose again and do not want him to hurt his head again. But I know he will hate having to be the only one in school who has to wear a helmet and that everyone will be looking at him and I am sure kids will make fun of him, etc. He already hates going to school & says other kids call him stupid. His life is so tough, I dont want to make it harder for him. But I dont want him to get hurt again either. I could really use some advice out there from other parents who have dealt with this dilemma.

Comments

Re: Re: Seizure Helmets & School - Need some advice! Please!

Submitted by DJsMom on Thu, 2006-09-14 - 10:30
Thanks for the validation. I just did that this week - I called our local Suncoast Epilepsy Association, which will do presentations & education anywhere that they are asked to go! I thought if I could educate the kids at his school and they understand what a tough time he has, then hopefully they will be less likely to make fun of him and maybe even be nicer to him. Unfortunately, his father (ex-husband) found out I did that and was livid. And he absolutely does not want my son to wear a helmet. DJ doesnt want to either, and without his Dad's support in this matter, I am doubtful he will keep it on his head. So I did buy him some headbands (like they wear for tennis) in hopes that it will protect his head a little, and get him used to wearing something around his forehead. Then I intend to buy him one of the full90 helmets this weekend. I found a local store on the full90.com website & will have him try one on & see how it goes. DJ takes Topomax, Lamictal & Clonazepam. He has also tried: Tegretol, Keppra, Depakote, Zonegran, Clozabam and Trileptal.

Re: Re: Re: Seizure Helmets & School - Need some advice! Please!

Submitted by angel_lts on Thu, 2006-09-14 - 14:16
Well I am glad you are going to educate the kids. I used to do it my kids school(I am the one with seizures). I even had the kids come up and perform a seizure so they would understand what it was. I did it many of the classrooms for two years. I had good positive feed from the kids themselves. take care Lisa http://health.groups.yahoo.com/group/epilepsyapproach/

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