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seeking similar story
Wed, 03/01/2006 - 18:12Topic: Parents & Caregivers
hi, i am new to this site and am looking to talk with someone in a similar situation as my son and family. my son is 11 years old with refractory complex partial seizures. he has the vns and also on zonegran. does anyone else have a child that has grown out of this type of seizure? my hope is that the vns will completely control them and no more meds.i would love to chat or email someone.....i still have a hard time with this at times. thanx cindy
Re: Re: seeking similar story
Submitted by Mom2Chris on Wed, 2006-03-08 - 22:29
Hi Trudy: I too live with my 8 year old son's epilepsy, thanking God for each seizure-free day! He is doing well on his meds (he is on Lamictal and has only had 2 seizures, prior to beginning the Lamictal). What caught my attention in your response is the tic-thing you mention your daughter developed. What kind are they? My son has started to lightly slap his hand against his thigh very often especially when nervous (he's quite shy and a bit uncomfortable in social settings, which is where I notice it the most). I've mentioned it to my neurologist who doesn't think it's anything, but I see it more and more each day and am becoming quite concerned. I'd love to know what your daughter does and how you deal with it. Cindy: You are definitely not alone. Welcome to the site, I've found a lot of support and caring from a lot of GREAT people who have epilepsy or are dealing with it in their life. I would say that the most important thing you can do for your son is the learn ALL you can, while at the same time allowing him to live as normal a life as possible. God bless you and your family! Maureen