Community Forum Archive
The Epilepsy Community Forums are closed, and the information is archived. The content in this section may not be current or apply to all situations. In addition, forum questions and responses include information and content that has been generated by epilepsy community members. This content is not moderated. The information on these pages should not be substituted for medical advice from a healthcare provider. Experiences with epilepsy can vary greatly on an individual basis. Please contact your doctor or medical team if you have any questions about your situation. For more information, learn about epilepsy or visit our resources section.
Panayiotopolous Syndrome/Benign Occipital Epilepsy
Thu, 04/13/2006 - 16:40Topic: Parents & Caregivers
My 5 year old was recently diagnosed with Panayiotopolous Syndrom/Benign Occipital Epilepsy. For anyone else with the same diagnosis, have your seizures ever appeared during the day? My daughter's have only surfaced during the night and my doctor has suggested they may not appear during the day.
Also what meds, if any? Thanks
Comments
Re: Panayiotopolous Syndrome/Benign Occipital Epilepsy
Submitted by ekoorb on Mon, 2011-10-17 - 22:13
MRI was used to rule out any structural abnormaliities. Our observations during our daugther's seizures along with an EEG led to the diagnosis.
Re: Panayiotopolous Syndrome/Benign Occipital Epilepsy
Submitted by wiff96 on Mon, 2008-07-21 - 09:45
Hi there my daugher is about to turn 4 she was diagnosed with Panayiotopolous Syndrome in march 08. Since the end of december last year she has had 17 seizures a large majority of them turn into status seizures and they all start within 3 minutes to 2 hours of her falling asleep we are getting anywhere from 3 weeks apart to 4 days apart. We can clearly see now that is she eats alot of crappy food particuarly things with large amounts of msg no more canned tomato soup (natural msg in tomatoes found to be the culprit) or if she has a big day is sick or is overtired it tends to bring them on. She started on epilim but after 5 months we have seen no improvement we are weaning her at the moment and she is taking frizium to see if that will stop the seizures until we see our neuro in two weeks. I am frustrated and tired , I cant believe the improvment in her behavouir since coming down in the epilim i have my gorgeous huggy girl again. We tried her on tegratol which she is allergic to and we are being told the next option to try is keppra it just feels like a big game with the drugs. Mind reading would be handy to know when there coming to he he lol. If anyone is going through the same thing and would like to chat please contact me
Re: Panayiotopolous Syndrome/Benign Occipital Epilepsy
Submitted by GideonYaffe on Sat, 2008-04-12 - 01:17
My daughter has had daytime seizures. This syndrome is one possible diagnosis. Was an MRI used in diagnosing your child?