No Diagnosis

My 22 month old son has been inpatient for seizures for more than 30 days since May 1, 2006. On May 1, Beau was 18 months old, he vommitted and then began having a complex partial seizure, mostley in his eyes, left side of his face and neck and left arm. His seizure lasted over an hour and was stopped in the emergency room. We then stayed in the PICU for two weeks looking at several reasons for the seizure. Nothing was found. Beau has had three more seizures since May 1, all lasting close to an hour except the most recent one was over two hours. We go to the emergency room every time to have the seizures stopped. We had a diagnosis of ADEM for a while and went through a steroid treatment for 5 days. Beau seemed to get better, he seemed strong and almost like his old self. We were so hopeful that we had a diagnosis, but now after this fourth seizure and some leg movements that the doctors aren't sure what to call he is back to being a mystery. My husband and I are very scared especially since we don't know what to expect. Beau will have some genetic testing done later this week, however nothing even remotely like this runs in our families. Beau is on so much medication that he can't even hold his head up. He was on zonogran, phenobarb and dilantin for a week and he barely woke up to eat. His neurologist stopped the dilantin on Friday because both the dilantin and the phenobarb levels were much higher than therapeutic. I have a call in now to see why he is so medicated. This nightmare since May 1 doesn't have an end in sight. We are told that we might not get a diagnosis other than seizure disorder. That's fine but we want our son to wake up and have some quality of life. Any advise on medication, coping and patience is needed.