Community Forum Archive
The Epilepsy Community Forums are closed, and the information is archived. The content in this section may not be current or apply to all situations. In addition, forum questions and responses include information and content that has been generated by epilepsy community members. This content is not moderated. The information on these pages should not be substituted for medical advice from a healthcare provider. Experiences with epilepsy can vary greatly on an individual basis. Please contact your doctor or medical team if you have any questions about your situation. For more information, learn about epilepsy or visit our resources section.
NEW & LOST...19 Year Old Daughter 2 seizures in 2 months
Wed, 11/15/2017 - 22:53Topic: Parents & Caregivers
My daughter who has a lifelong history of anxiety and had first seizure at 18 yrs old in August 2017 and again 2 months later at 19 yrs old in October.
First seizure diagnosed as Tonic Clonic
Second seizure not witnessed but tongue bite seems to confirm seizure
Both seizures preceded by stressful events
EEG after 2nd seizure showed one spike during hyperventilation possibly contaminated by muscle movement
CT scan clean
MRI clean
Sleep deprived EEG being ordered
Epileptologist’s first guess is JME and suggests Lamictal but is waiting for more testing before prescribing. What about nonsepileptic seizure? Daughter is depressed. Doesn’t want to return to college. My head is spinning.
Any insight or advice for my daughter or myself?
My daughter has poorly
Submitted by Lifesa on Tue, 2017-12-05 - 14:49
My daughter has poorly controlled seizures but when I was searching around for answers I came across an old article about clinicians finding out that propylene glycol was the cause of their patient's seizures. That stuff is in a lot of foods and can also be hidden under "natural flavors." A glycol is an alcohol, which I know triggers seizures in my daughter. So I made sure she wasn't getting any glycol stuff. I saw that she was getting a lot of polyethylene glycol in her constipation medicine so I stopped that, as well. The frequency of her siezures has gone down dramatically. She was having them about once every ten days and now it's about every five weeks..