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Feeling a little sad
Sun, 07/23/2006 - 22:03Topic: Parents & Caregivers
My 5 year old had a seizure in March (a few several months before that) and had not had another one until this morning in her sleep. She has a childhood form that she is expected to outgrow. What sucks is when you don't see a seizure for so many months, you get lulled into a false sense of safety and hope things have progressed and when one comes back, it really hurts and throws your emotions back into a tailspin. I just need to stay strong for her.
Comments
Re: Re: Re: Re: Feeling a little sad
Submitted by ekoorb on Mon, 2006-07-31 - 22:13
Has your daughter been diagnosed with a certain type of epilepsy? My child has benign occipital childhood epilepsy. This is a type that hopefully is outgrown within 2 years. My daugther's seizures have occurred at night during sleep. What about your daugthers? I am sorry your husband ignores it. Do you mean he does not like to talk about it? I think everyone deals with their stress differently and as women, we usually feel the need to discuss things. I know I do. This site definitely helps but maybe you have a good friend you can confide in when you are feeling the need. I know what you mean about crying sometimes. When our child was first diagnosed in March, I was so sad. Then I went into turbo mode and spend all my time focussing on finding the best care possible for her. Now that we are months away from that time, I find myself dealing more with my emotions now. It's almost like a post-traumatic stress in response to a frightening seizure she had in March. Don't feel alone in your tears. I also think it is important that we allow ourself to be sad but then realize what a beautiful child we have in front of us. I would love to hear back from you. If you ever want to chat in the chatroom, put me down as a buddy and we can try to connect. Thanks.
Re: Re: Re: Feeling a little sad
Submitted by littlebug on Mon, 2006-07-31 - 19:24
i'm so sorry.my daughter is also 5.she went 10 months without a seizure.I started thinking that she out grew it.I was ready to take her off of her meds.I thought for sure she finally outgrew them.then one night she was a sleep on the couch she was sick.I walked into the living room and she was convulsing.she has never done that before.I was trying to convence myself that it wasnt happening but it was.I didnt have anyone to talk to.my husband ignores it.I was getting so depressed.so sad for her.it seems that I found this site at the right time.sometimes I wish though that I could actually talk to someone that understands as well.crying at night seems to help.try to stay strong.I know its not easy.my daughter feels like shes the only one that has seizures.Its not always easy on any one but we all make it threw it some how.