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Do seizures cause pain?
Thu, 06/08/2006 - 17:29Topic: Parents & Caregivers
Hi
I am the mother of a 5 1/2 year old who is progressively getting worse. His name is Danny. He has many types of seizures. He has at least 10 notable seizures a day and probably many more. he often requires interventions such as oxygen, suctioning, extra clonopin or diastat. he is on several medications clonopin, keppra, felbatol, phenobarb, and vigabitrin and several others for gi issues. Danny has tried all the other meds to no avail. We recently were told that there are only options left are to do a surgery that splits the 2 hemispheres or to do nothing. We feel this child is in pain and requires more sedation to be comfortable. The neurologist says that seizures are not painful. Danny is currently functioning at a 0-3 month level. He did progress when he was a baby. He did sit, stand and smile all of that is now gone. I am wondering do seizures cause pain? I think they do.
Comments
I feel your pain Dee I
Submitted by kk2012 on Mon, 2019-09-09 - 23:17
I feel your pain Dee I started having seizures a year ago out of no where and like your son it IS the WORST pain I experience! Feels like somebody is twisting my arm to the point of breaking it and I to see and hear around me for most of it until I pass out . You guys are not alone !
Re: Do seizures cause pain?
Submitted by lindsay1416 on Wed, 2010-05-05 - 09:35
I was wondering what your son's seizures were caused from?
Has Danny been tested for
Submitted by Anonymous on Tue, 2015-08-04 - 23:05
Has Danny been tested for Dravet Syndrome? Its a rare neurological disorder caused by SCN1A gene mutation. My son has this about the same age. And nearly exact conditions. God bless.