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Abnormal EEG-

Thu, 10/26/2017 - 14:25
A few months ago, my daughter (8) had a sleep study to test for possible sleep apnea. As a result of that test, we were told she had several spikes in her brain while she was sleeping and we were ordered a sleep deprived EEG to follow up. The result of that test showed more spikes. I was told she doesn't necessarily have epilepsy but that she's possibly as risk for it and we were referred back to the neurologist. Because she's considered a new patient, all new patients appointments are scheduling way out right now. The nurse said she was going to talk to the dr (who is on vacation this week) because my daughter needs to be seen right away and they'll have to fit her in as soon as possible. We have never noticed any type of seizure behavior from her. I've conferred with her teachers and they've not noticed anything either. No muscle spasm, no staring off, no tics, nothing. I did do some reading on this site and saw people posting about dizzy/fuzzy spells, so I'm going to gently ask her if that's ever happened to her. I guess my questions are: 1. Is this unusual to have the spikes but no seizure activity? 2. Are there other symptoms that I don't know about that she could have had that I missed? 3. Should I be concerned that they want her in ASAP or is that standard? 4. Most importantly: What questions do I need to make sure I ask at the appointment? I want to make sure I get all the info that I need and usually take pen and paper to appointments. I'm definitely worried but not panicking. Just trying to wrap my head around this and get all the info I can so I don't walk into that appointment unarmed. Thank you!

Comments

Hi Susan,I have had epilepsy

Submitted by Chelse C on Wed, 2017-11-01 - 17:33
Hi Susan,I have had epilepsy my entire life and run grand and petite mal seizures both night and day (mainly night and that's more common) Most of those symptoms (poor sleep, hard to wake up, groggy, literally unable to stay awake (sometimes even with stretching that's when it's a really bad one and that causes so many problems), etc.) are what I experience during my night seizures. However, there are a lot of confounding variables at play. =\How long has she had the ADHD diagnosis? Have you noticed these symptoms when she was on a previous ADHD med? Be cautious about mixing supplements with meds... I'd look into possible interactions and ask the her gp her next visit. I normally have to book neuro appointments at least 3 months out for my neurologist- he's amazing and worth it. Anyway, wanted to weigh in on this, but everyone's experience with epilepsy is different.

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