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7 month old with unknown seizure disorder
Tue, 12/27/2005 - 22:11Topic: Parents & Caregivers
Hi, I am looking for any advice out there. My 7 month old daughter had a full body seizure approx 1 month ago. She was taken to the children's hospital via ambulance. The seizure lasted for 19 mins, valium was given to stop it. She was admitted to the hospital. Her CT, spinal tap, EEG and blood work were all normal. She was released and didn't have another seizure for 2 weeks. The 2nd, 3rd and 4th seizures were isolated to either her right or left side of her body and her neck and head. She was sent home after the 3rd seizure on Phenobarbitol and her dosage was increased after the 4th seizure. She had a 5th seizure on Monday that lasted for over 2 hrs. She was hospitalized and she had a normal MRI and we are still waiting for the results from the EEG. She is on Phenobarbitol, Dilatin and a third drug that I am not sure of the name of. She can't hold up her head and she can't even look at me. I feel like I have lost my baby and I am not sure what to do to help her. Thank you
Comments
Re: 7 month old with unknown seizure disorder
Submitted by momofaperfectbaby on Thu, 2006-10-19 - 04:24
My baby had her first seizure right after she turned one. We are in the process of tests still, but it is heartwrenching, not too mention terrifying. My baby was also taken by ambulance, we thought she was choking. They put her on Clobazam, and at first she was very sleepy, but now she seems back to normal. My baby was very sleepy after her first few seizures, and was absolutely not herself at all. I felt sad that there was something terribly wrong with her, and that I wanted my baby back. But the medication she is on is working for her fairly well for now, and she is happy again. She even is starting to pull herself to a stand and let go! Good luck!
Re: 7 month old with unknown seizure disorder
Submitted by cheryl2 on Fri, 2006-01-27 - 13:10
My daughter had her first seizure at 2 months. Phenabarbatol SUCKS. Ask your doctor about Mebarol, its a cousine of phenabarb. Melody , my daughter was a zombie on penabarb. Dilantin kills the gums and can grow rapid hair growth all over the body. I know , I've been dealing with this for 14 years. Vlporic Acid is very good, but not for children under 2 years, it can hurt their liver. Melody did take valporic acid at a 14 months old because she had grand mal and petitie mal seizures. They check their blood once a week. She went 5 weeks without a seizure. That was a miracle. Although she lived with epilepsy she still lived, grew normally, My daughters scituation is very different, children can live with seizures and have a very normal life. My daughter ended up totally disabled at the age of 2. It took me years to find out why she seized for 8 and a half hours. No one has ever seized that long, nor have they ever lived threw one that long. I found out 2 years ago that Melody was born with a cleff palate that was never caught. Thats what happened to her. It's a long story. But she smiles and laughs even though she can't move any part of body. Hang in there. If you need to talk you can email me at cherylkettle@cox.net.. God bless you and your child, I will pray for you both.