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Are Seizures meds making me feel psycho?please tell me I’m not alone
Thu, 10/19/2017 - 16:53Topic: Medication Issues
I’m new, 32 year old single mom with two kids. Librarian/farmer/ photographer. Since I started having seizures I lost my job due to not being able to drive. I was just diagnosed with simple/complex partial seizures. I was very resistant to try the meds but after a lot of pressure from doctors and family and the fact that I need to work I started Zonisamide Monday night, smallest dose 100mg. It didn’t seem so bad. Tuesday I started feeling really dizzy, I felt like Alice in Wonderland. I felt big and small and everything around me was moving and vibrant and it made me nauseated. Tuesday and Wednesday felt the beginnings of seizures but it’s like they got stuck and my left side of my body ( that usually convulses) hurt, Today, Thursday, I’m insanely irritated and aggravated, can’t concentrate not feeling like myself at all. I can’t eat, I feel like a tweaker ready to chew off my own tongue or anyone who comes near me. I feel like I’m losing my mind. Is this normal?
Comments
I appreciate you sharing your
Submitted by LaGallina on Wed, 2017-10-25 - 09:38
I appreciate you sharing your story, that day I was feeling the worst of it ( I immediately stopped the pills) I was so angry I was cussing out my partner which is completely out of character for me. Luckily he knew this and understood it was the meds. But I honestly felt like I hated everyone. I wish you luck with getting off your meds and I truly hope you find something that works for you and that your family and friends can have understanding so you can mend your bonds.
No, I have not found relief
Submitted by birdman on Fri, 2017-11-03 - 22:27
No, I have not found relief after fifteen medications. I've had brain surgery to remove tissue from the right temporal lobe and I had VNS therapy for five years but nothing has comfortably brought seizures under control. My seizures are usually just simple partials. I have a complex partial once every three months or so and I do not have the generalized (Grand Mal) seizures like I did as a teen. My frequency isn't too high so I accept the seizures. Thirty-five years ago I tried new medications (which were very few back then) with the hope of greater control. Today when my doctor offers to prescribe something new I am very slow to try it. As you know the discomfort and embarrassment the pills can cause isn't worth the increased control. Today there are statistics that back up my experience. It is not worth it for me to try to gain complete control with medications. I have "refractory epilepsy". The next treatment I will try is RNS.
Thank you for sharing Michael
Submitted by LaGallina on Wed, 2017-10-25 - 09:38
Thank you for sharing Michael, it can feel embarrassing to talk about how I was behaving. I was grateful that during the worst of it my kids were in school because I felt so aggravated and aggressive. I can’t have them exposed to that. So are you saying you now have found relief after 15 trials?