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Are Seizures meds making me feel psycho?please tell me I’m not alone
Thu, 10/19/2017 - 16:53Topic: Medication Issues
I’m new, 32 year old single mom with two kids. Librarian/farmer/ photographer. Since I started having seizures I lost my job due to not being able to drive. I was just diagnosed with simple/complex partial seizures. I was very resistant to try the meds but after a lot of pressure from doctors and family and the fact that I need to work I started Zonisamide Monday night, smallest dose 100mg. It didn’t seem so bad. Tuesday I started feeling really dizzy, I felt like Alice in Wonderland. I felt big and small and everything around me was moving and vibrant and it made me nauseated. Tuesday and Wednesday felt the beginnings of seizures but it’s like they got stuck and my left side of my body ( that usually convulses) hurt, Today, Thursday, I’m insanely irritated and aggravated, can’t concentrate not feeling like myself at all. I can’t eat, I feel like a tweaker ready to chew off my own tongue or anyone who comes near me. I feel like I’m losing my mind. Is this normal?
Comments
Relax and stay with it.
Submitted by just_joe on Sat, 2017-10-21 - 21:53
Relax and stay with it. seizure meds are nothing like aspirin where once taken it goes away after a few hours. Side effects happen while your body is getting used to the medication. The dosage is set by the neurologist because he wants the therapeutic levels to be at a certain level in your body. That time period is generally 3-4 weeks. During that time period the side effects generally go away. The therapeutic levels are there as protection in case you in case you took your meds late of even forgot a dose. What I did when we changed meds and that was happening to me I would find something to do. I would go find something that needed fixing. S I tore it apart and put it back together. It relived the tension and tarring thing apart got rid of the irritated feeling
I’m afraid it wasn’t
Submitted by LaGallina on Sun, 2017-10-22 - 12:32
I’m afraid it wasn’t something I could redirect. I consider myself a mind over matter person, I meditated through my two home births and I sat through 12 hours of a huge tattoo back piece feeling great.But this felt like it wasn’t me in my mind and to get through the thoughts of wanting to die, I told myself I just had to get through today. I couldn’t image going through another day like that without killing my self. I’d rather live every day of my life with a seizure than feeling like that. At least I know what to expect and I have techniques that make it go as smoothly as possible. Of course the desire of having my life and independence back is so strong. At what cost? I’m wondering how many trails and errors? What if it was worse and I killed my self? I’m a naturally happy person, I was born smiling, but Mentally I’m still raw from the experience and I’m not sure when and if I will feel like I can try again. I’m thinking Diet, exercise, CBD, acupuncture, and even smoking pot sounds more appealing at this point.
Hang in there! It takes a
Submitted by epihelp on Sat, 2017-10-21 - 16:05
Hang in there! It takes a while to build up the medicine in a person's system then find the right dose. Sometimes the strange feelings could be related to seizure activity and/or to medicines. Talk to your doctor/nurse about how much to take and when to make changes. Let them know how things go. Do you keep a diary? Keep track of how you feel in an online diary, such as diary.epilepsy.com or with paper/pen or just in your cellphone.. Whatever works best.