Community Forum Archive
The Epilepsy Community Forums are closed, and the information is archived. The content in this section may not be current or apply to all situations. In addition, forum questions and responses include information and content that has been generated by epilepsy community members. This content is not moderated. The information on these pages should not be substituted for medical advice from a healthcare provider. Experiences with epilepsy can vary greatly on an individual basis. Please contact your doctor or medical team if you have any questions about your situation. For more information, learn about epilepsy or visit our resources section.
A warning about Onfi/Clobazam
Wed, 04/15/2020 - 13:19I want to scream this from the rooftops because my experience was so awful. Of course, everyone is different and their bodies react differently. However, withdrawal from onfi was THE most difficult I ever had to go through. I was so sick for so long mentally and physically.
Please use with care and have a health care professional who understands the withdrawal process.
Be well and stay safe everyone!
Comments
Hello, and thank you for your
Submitted by scarolinus on Sat, 2020-04-25 - 16:04
Hello, and thank you for your comments on Clobazam. There's a reason that it's a controlled substance. I've just been started on it along with some others in a my "cocktail". I was not happy with my epileptologist doing so as I have taken low dose benzodiazepines in the past. Getting off is not easy or pleasant.Interestingly he was adamant about not letting me have either Valium or Ativan as an emergency drug when I was having 30 minute warning auras.I do suggest a second opinion if you have any concerns, no matter what, or how much you trust your doctor. Even the best sometimes think more of the illness than the patient.It sounds as though you may have one of those.You have my sympathy
That is a great suggestion. I
Submitted by katec1 on Thu, 2020-04-16 - 14:49
That is a great suggestion. I recently upped my laminate and insurance is good with that. I am about to start a progesterone pill bc my seizures may be influenced by hormones and my dr was saying if it isnt covered, check out good Rx. More people need to know about it!!!