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A warning about Onfi/Clobazam
Wed, 04/15/2020 - 13:19I want to scream this from the rooftops because my experience was so awful. Of course, everyone is different and their bodies react differently. However, withdrawal from onfi was THE most difficult I ever had to go through. I was so sick for so long mentally and physically.
Please use with care and have a health care professional who understands the withdrawal process.
Be well and stay safe everyone!
Comments
Thank you! I am involved with
Submitted by katec1 on Thu, 2020-04-16 - 11:11
Thank you! I am involved with the epilepsy foundation. I see a counselor through your org in NYC! Thanks for being awesome!
If your new neurologist isn’t
Submitted by Patriotrehab on Thu, 2020-04-16 - 14:06
If your new neurologist isn’t able to find a medication that works as well as Clobazam did for you, you may want look at some of the prescription discount programs like GoodRX. They can’t be combined with insurance, but they are sometimes less than the cost of a co-pay. I’m a veteran and the VA is fighting me on paying for my Clobazam because it’s non-formulary medication (similar to your insurance issue) and possibly another prescription because their doctors don’t want to prescribe it because of my seizures history, so even though I’ve never tried these programs before I may be trying them for myself soon. Clobazam may cost me $35 for a two month supply at the starting dose with the GoodRX coupon.
Funny thing is when I was on
Submitted by katec1 on Thu, 2020-04-16 - 11:11
Funny thing is when I was on the onfi, it worked pretty well!When I had to stop taking it due to insurance issues, my neuro told me to break it in half and take half and if I felt ok, stop taking it. I did and I felt ok for two days, so I stopped...the half-life is about 3 days, one that day, it knocked me on my ass!!!! I can’t believe me doctor was so reckless. Since then, I have been working with a new neurologist. She is awesome and I will never leave her until she retires, which I hope isn’t for a long time!!! Thanks for your thoughtful response. Be well and stay safe!