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My Life With Epilepsy or Should I Say No Life?

Thu, 11/11/2010 - 06:55
I used to have a life. A real life, even with epilepsy undiagnosed from childhood. When I started to have bigger problems than I thought I could cope with on my own, I went to the doctor for help. That was the biggest mistake in my life. The rest is history and current events. I started a blog, partly to save my own life. I think it has. I'm alive and kicking (lol, the seizures make me do that). Please read it if you want to know my story. I would love to hear from the rest of you on this site. I complain about this site a lot and many of you probably wonder why I'm here. I'm here because of all of you. Thanks and I'm looking forward to your comments. You can leave them here or on any one of my blog posts. Click on this link to leave a comment on my blog. For those of you who left comments, you can click on the same link to view my replies as you clicked to leave them or you can subscribe. Click on this link to subscribe to the comment feed. Baruch Hashem. Hoshia na.

Comments

Re: My Life With Epilepsy or Should I Say No Life?

Submitted by zealot on Fri, 2010-12-03 - 02:19
Hi Everyone, I had to wake up to take my midnight meds. Two hours later, I'm exhausted, but I can't sleep. I'm so drugged I can't think straight, but I think the seizures wake me up right before I need to take my meds because I always am having weird dream/sensations when my alarm goes off. It's pretty bad. I'm not packed, I don't know where I'm going to go, and I'm too sick to figure any of it out. I called for more help today and all I got was JFS again. The leeches, vultures, vampires, who did me in. I don't think I'll make it to 2011. Baruch Hashem. Hoshia na. Devorah Zealot Soodak http://psychout.typepad.com/ the zealot needs help! I just added this quickie post. It explains the Hebrew that I use before I sign my name. P.S. Please read my blog. Thanks. P.P.S. Please click here to read my latest post. P.P.P.S. Please click here to read my featured post.

Re: My Life With Epilepsy or Should I Say No Life?

Submitted by 3Hours2Live on Fri, 2010-12-03 - 07:21
Hi Zealot, I hope you have better results finding housing. The stalled economy has certainly resulted in many stalled demolition plans, and plenty of places, with planned replacement put on hold with past-due needed demolition, being exploited for cash income no matter the great safety hazards. I'm doing much better health-wise again. The biggest problem I seem to have with larger doses of Keppra during my clusters, appears to be mainly when I have any virus or active allergy, and the coincidental increased sensitivity in my lungs with more than minimal Keppra. Tons of spam and very slow, to zero, internet speeds, have slowed up my internet activities. My latest clues between epilepsy and the works of Omar Khayyam, and his biography, ended up at a symposium that included "The transporter hypothesis" as a possible explanation of Multidrug resistance in epilepsy (Speaker 2: Wolfgang Loscher, page 20), and "membrane transporters" (Speaker 3: Christoph Baumgartner) at: http://www.sfb35.at/pdf/HP_2.Symp_Programm_2009_K.pdf . I think "The Wine of Wisdom" critic "Razi" ((1177-1256)?) might have intersected views with the "mind/body duality" and epilepsy. And as if I'm not confused enough, I'm tempted to read more of Robert Burton's "The Anatomy of Melanchology". Lots of Love, Tadzio

Re: My Life With Epilepsy or Should I Say No Life?

Submitted by zealot on Sat, 2010-12-04 - 06:58
Tadzio, It's nice to know that there is an explanation to multi-drug resistance other than "pseudoseizures." Perhaps the "ology" will rejoin "neuro." That would be a beautiful thing. Baruch Hashem. Hoshia na. Devorah Zealot Soodak http://psychout.typepad.com/ the zealot needs help! I just added this quickie post. It explains the Hebrew that I use before I sign my name. P.S. Please read my blog. Thanks. P.P.S. Please click here to read my latest post. P.P.P.S. Please click here to read my featured post.

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