Community Forum Archive

The Epilepsy Community Forums are closed, and the information is archived. The content in this section may not be current or apply to all situations. In addition, forum questions and responses include information and content that has been generated by epilepsy community members. This content is not moderated. The information on these pages should not be substituted for medical advice from a healthcare provider. Experiences with epilepsy can vary greatly on an individual basis. Please contact your doctor or medical team if you have any questions about your situation. For more information, learn about epilepsy or visit our resources section.

Topic: Epilepsy: Insights & Strategies

Fear fo been left alone

11/2019 | 2 Comments

I’m 30 and I got diagnosed in March, I have lost my business after 10 years of hard work and my license, I have four children and my wife, I am...
Issues falling asleep

07/2019 | 3 Comments

Hello, I’m new to this website and am looking for any help! I’ve had 7 seizures in the last 6 years. Which isn’t an extreme amount, but any amount is...
CBD Success

06/2019 | 0 Comments

CBD can deliver amazing results to a variety of maladies including epilepsy. I researched several products and tried a couple before landing on RECEPT...
Is This A Seizure

05/2019 | 1 Comments

First off, i'm sorry if this post is going to be a little all over the place, i'm just in a really anxious mood. Whenever I was a little kid I would...
Son he Cryptogenic Epilepsy

02/2019 | 2 Comments

Hello my son has epilepsy. He’s had it since he was one years old. He is now five and on several medications. He has seen three different neurologist...
Odd experience during my EEG

01/2019 | 1 Comments

I had my first EGG done yesterday and I’m wondering if the experience I had was “normal.” While they flashed the lights in my face the left side of my...
Tegretol and liver disease

09/2018 | 1 Comments

I’ve been on tegretol for 20+ years and now doc thinks I have liver disease from that meds. I have been seizure free with that meds. My neurologist...
Unmedicated epileptics - Dreams

09/2018 | 1 Comments

Hi there, do any of you remember your dreams pre-seizure? Or during seizures? What about post-seizure? Would you like to share them?
Will my children have epilepsy?

08/2018 | 1 Comments

Hi everyone. I have some concerns and questions which I would really like some answers to, if anyone can help. I have been with my boyfriend for two...
Seminar on Epilepsy and College!

08/2018 | 0 Comments

Seminar in Nashville on Sept. 15 for students on doing college with epilepsy! Details/Register online:
Hi everybody!

05/2018 | 1 Comments

Hi everybody! I am a new person. Very happy to join this forum. Looking forward to receiving the help of everyone. Thank you everyone for reading!
Seizures and Tanning Beds

04/2018 | 1 Comments

writing a book

02/2018 | 21 Comments

hello everyone i am writing a book and wanted some people to tell me some questions that people want answered or questions you have been asked or...
Boyfriend w Epilepsy and mood swings

02/2018 | 4 Comments

I have been dating my boyfriend for almost 4 months. I knew he had epilepsy from the beginning. Things have been pretty good, normal new relationship...
Remove tongue numbness?

12/2017 | 1 Comments

Heya, when i seize i bit my tongue, it gets swollen for 2 days while being painful to eat, you know how it goes. But it wont stop feeling numb like i...

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