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Sound like an abnormal EEG?
Tue, 04/15/2008 - 19:42 I really want to keep this short as my story is extremely complicated, in a nutshell i was misdiagnosed with tics and my first neuro. was the doctor from hell. I had my second EEG today, and im starting to wonder if massive facial twitches are normal during the Strobe light? Every time I've had my EEG my face goes crazy at the strobe, it starts off with a grimace and a grunting sound, my eyes are twitching, every muscle in my face seems to be moving. Even my nose, which I didn't even know i could move was twitching! When ever I tell a doctor/nurse/tech about this they all give me strange looks with no answers, ask if my EEG came back Positive, or clear, and then just sort of shrug it off. Im just curious is there anyone on this forum who had similar experiences? are these facial twitches just a normal part of the strobe? (note: During the WHOLE Strobe I twitch, even the lowest setting). Thanks I guess, Im just getting a tad frustrated with my extended diagnoses, and this confusing EEG situation!
Comments
Re: Sound like an abnormal EEG?
Submitted by Erik J on Wed, 2008-04-16 - 20:13
Thanks so much, after the call saying it was normal I was rather angry, im going to wait for the next seizure to see what he does, If he suggest another EEG im dumping him. I'm glad he said its not totally ruled out and to come back if anything else happened but still. I wish neuros could live through diagnosis =/. Im questioning going to an epi-doc but im unsure, Idk if its worth it or not, but i've seemed to have gone through all of my neuro options nearby lol.
Im also glad that I know it IS possible to get a diagnoses without an EEG
as for the MRI It was normal.
I'll try to keep you guys all update. Not sure to see an epi-doc or not. It seems finding a good doctor is impossible.
Re: Sound like an abnormal EEG?
Submitted by SunflowerPower on Wed, 2008-04-16 - 20:01
This is very interesting. Thanks for the great info. I used to have massive face twitch episodes after waking up in the morning. I have been diagnosed with a type of dysautonomia that causes tachycardia and lack of oxygen to the brain when in the upright posture. This is why I would feel so sick and half-conscious when first getting up in the morning.
Tachycardia causes hyperventilation which can trigger dyskinesias. I am finally starting to get all of this figured out. Perhaps I do not have epilepsy after all.
Yippee!
This is very interesting. Thanks for the great info. I used to have massive face twitch episodes after waking up in the morning. I have been diagnosed with a type of dysautonomia that causes tachycardia and lack of oxygen to the brain when in the upright posture. This is why I would feel so sick and half-conscious when first getting up in the morning.
Tachycardia causes hyperventilation which can trigger dyskinesias. I am finally starting to get all of this figured out. Perhaps I do not have epilepsy after all.
Yippee!