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Problems with specialist
Thu, 06/18/2015 - 18:10so I just had my epileptologist appointment today and at first it went well. I ended up having a breakthrough during my appointment. During my seizures my legs will go numb, like paralyzed feeling and I can't walk or move them until about an hour or so after when the feeling comes back and the seizure subsides. Because of this alone my specialist thinks they're psychological because he's never had a patient with epilepsy where their seizures cause their legs to go numb. Then when he asked about my past he really was dead set on psychological because of what I've been through, but all those past problems were dealt with, treated, and I was labeled as healthy after treatment and taken off medications because I no longer had those issues. My problem is that my seizures have been the exact same every single time and haven't changed. When they put me on keppra, they stopped completely. When my body got used to the dosage I started having breakthroughs so the doctor that prescribed the keppra increased it and they stopped again. It's been over a month since my last increase and I started having mini breakthroughs again. I don't believe they're psychological at all. I can pin point in my brain exactly where they start everytime and I can feel it move to the other side of my brain, it feels like a needle shoved inside my brain with fire ants exploding from those two points. And it's never changed, always the same feeling. He scheduled me to go to an EMU for 3-7 days this Monday morning and I'm praying I can prove to him that they're not psychological. Any input or advice from anybody will help me relax.
First I had 3 doctors all
Submitted by AMPetti on Tue, 2015-06-23 - 12:36
First I had 3 doctors all tell me it was epilepsy, 2 of which were ER doctors that treated me when an ambulance brought me in twice. It just confuses the heck out of me. I just want answers. The epileptologist firmly believed in the beginning everything was epilepsy and pointed to epilepsy... Until he had my husband leave the room and asked me about my past and what I went through, I even told him all my past issues I saw help for, was medicated, eventually was taken off all medication because I got over everything and was fine. Several years later, is when these seizures started, only a few months ago. I've researched and researched and there's really no information on PNES for one, just that you get sent to a therapist and hopefully they can help you. But my seizures have never changed, always been the same way since they started, just got worse and before they put me on keppra it led me to what the ER doctors labeled as two grand mals. So idk. I'm just lost. I'm in the emu currently and haven't had any AEDS since Monday morning 7am and I still haven't had a seizure. I'm tired of not having answers and if it does turn out to be psychological I will be upset because they just decrease the AEDs and take them away, which have been working for me, and send you to a therapist and I'm petrified to have seizures nonstop til they figure it out. Plus I didn't like how one minute he firmly believed epilepsy because of the video footage we showed him and all the seizures my husband thoroughly described. It was only til he asked about my past that he changed his mind and then even ended up saying "I've also never had a patient where their seizures cause their legs to go numb, so I'm gonna say this is all psychological and you just have s conversion disorder." I was like what? So now I'm just chilling in an EMU waiting for something to happen