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Different Seizure Types with JME?

Tue, 12/26/2006 - 19:40
Short and to the point: I was recently diagnosed with Juvenile Myoclonic Epilepsy, something that took me by complete surprise on account of the fact that I'm twenty. Still, I took the diagnoses in stride, and decided to come out swinging. To bad that JME apparently swings back! My neurologist dismissed my concerns that I was having absence seizures and partials on top of the standard myoclonic and tonic clonic activity. I understand that JME is marked by myoclonic jerks, and during times of duress, tonic clonic activity, both of which I've had. (Tonic clonic I obviously don't remember, but piecing together bystanders' stories, and my own experience of coming to slightly blue on the bathroom floor...it's a fairly sure thing.) At times I "zone out," which consists of me becoming essentially paralyzed. I can see (although sometimes it's distorted) and I can hear, but I can't physically respond. Most of the time I can't even blink. There are parts of these episodes that I don't remember afterwards, as my husband has told me various times I've done it, and he's spoken to me, without much response. For the most part though I'm aware, albeit fuzzy. It almost feels like electricity is running through my entire body, too. More extreme forms of these episodes involve me blinking my eyes over and over again, something I'm hardly EVER aware of, until I start to come out of it, and I realize things are coming to my vision in snapshots haha. They can last anywhere from two or three seconds, to what seems like nearly a minute, although the longer ones I'm usually not out for the entire thing. I'll spend maybe 15 seconds zoned, and then as I come out of it I can speak, but I'm still visually out of it, and it feels like my brain is slowly restarting. Diagnosed with JME. Started Topamax, then stopped due to side effects, hospitalized for fourty eight hours after Tonic Clonic episode, they pumped me full of Depakote in those two days, thens ent me home on it for a week, before switching me back to Topamax. Got sick again, started Lamictal a week ago. Also on Zoloft daily, and Xanax as needed for sleep disturbances. I just want some sort of comfirmation that I'm not crazy. It seems to me that even if you have one specific type of epilepsy, that having epilepsy at ALL could be a trigger for multiple seizure types right? thnkx

Comments

Re: Different Seizure Types with JME?

Submitted by lilithgdss on Thu, 2007-01-18 - 20:02
Hi, I just read your post, and it actually was really similar to the question I was going to ask on this board! I was diagnosed with JME when I was 20 or so (I had my first TC when I was 18, almost 19)...and realized at that point that I had had other symptoms since I was 15 or so. I am 26 now, and am on Epival, Topamax, Diamox (due to progesterone issues), and some supplements. I also take Ativan for cluster seizures. Although all my EEG's show "abnormal" brain activity and "considerable spike and wave activity of a primary generalized seizure disorder", since the age of 23 or so, I started developing Simple Partial AND Complex Partial seizures. Sometimes I just get the Simple Partial ones, and sometimes it leads to a Complex one...which then someimes leads to a series of cluster seizures. Odd thing is, my TC's have disappeared since then. (Although my body seems to have this feeling as if it "craves" wanting to have one, if that makes sense, just to get all this excess energy out of me.)ANd what you said about the feeling of electricity running up and down your body, I get that feeling a lot when I am in a simple partial/complex partial "fit". I also get a lot of headaches which easily turn into migraines, and my neuro says I have migrailepsy, because many times my migraines have triggered very bad seizures. Anyway...just wanted to say that yes, I think that having one type of epilepsy can make you prone or trigger other types of seizures....somehow. You're not alone with this! Kristin "i wanna sing songs and ramble on..."

Re: Re: Different Seizure Types with JME?

Submitted by Christina41586 on Sat, 2007-01-20 - 20:12
YOU'RE ME...seriously, I get the migraines, too. The little jerks have somewhat dissapated over the past few weeks, so maybe the Lamictal is working somewhat, but I'm still off. On Tuesday I was really tired, and I kept half nodding off at work, and then being rudely awoken by myoclonics. Not cool. I probably looked like a nutjob, good thing I was up in the training room where no one could see me!

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