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Advice for first doctor visit

Thu, 01/16/2020 - 15:13
I have been having strange symptoms for almost 3 years. It started off as complex scenic hallucinations that occur in the dark room - mostly at night. Then after I fall asleep I would be jolted awake and the visions would be everywhere. Everything I see is I front of my vision, not in my head. nothing is scary, most of what I see is familiar: cartoons, people, landscapes, shapes, colors. it’s like a hologram. Also during the day I may get blurry vision, wiggly lines, sizzling in my vision, followed by a sense of confusion, exhaustion, uneasiness. Several times I did not know where I was or why. After these types of incidents I am low, wiped out. Sometimes for days. I call it my spell since it seems to go on for a while and then I will get a break. Once I felt like something was pushing my shoulder down from above and then I could only walk to the left after that. Another time what I was reading switched around and looked like Spanish. I have an oncologist and when I told him about it he sent my to a cancer neurologist just to be sure. MRIs, spinal taps, eeg, balance and vision tests all were normal. Even did a comprehensive sleep study. From that it was proven that I was literally jolted awake, not dreaming when I have these episodes. No diagnosis. I am seeing a psychologist monthly to track my symptoms. No mental illness, no psychosis. I finally decided to get an appointment with a neurologist that specializes in epilepsy since what I am experiencing falls closer to that category. I feel like I am in the middle of an aura. So any advice on what to ask the doctor would be greatly appreciated. Anyone with similar symptoms I would also love to hear from you.

Comments

Hope you have been able to

Submitted by Patriotrehab on Tue, 2020-02-18 - 18:20
Hope you have been able to complete your 5-7 day VEEG EMU stay and got some answers! That’s exactly what I was hoping they would do for you. Sometimes they get answers, sometimes they don’t. But, I sure hope they did and I hope they are getting you the right treatment. 

Thank you! I go in tomorrow

Submitted by Suzane2020 on Tue, 2020-02-18 - 18:49
Thank you! I go in tomorrow for the video eeg. I have been having  episodes every night so fingers crossed! 

Hang in, there.  It's not

Submitted by kwmfc0730 on Mon, 2020-02-24 - 20:00
Hang in, there.  It's not easy going through this.  I have nighttime events that are 75 percent better, now, after 3 months of treatment with meds.  I ruled out a bunch of stuff on my own, too. Keep the updates coming.  You are not alone.

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