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60+ seizures in the past 6 months and seizure activity on 2 seperate EEG's but no diagnosis

Mon, 01/22/2018 - 17:57
I am a 35 year woman with no other health concerns. Last July I was at a dental appointment and within moments of being injected with prilocain among other numbing agents I had my very first seizure ever. We all thought is was a negative reaction to one of the shots I had been given. A few weeks later I followed up with the same dentist to finish my dental work and he decided to inject me again with prilocain stating that there was no way this medication was the culprit, and it had to be one of the others he had injected. Low and behold seizure #2. I was actually a few days out from a military PCS to a new duty station so there was nothing I could do but wait until I got to my new duty station to have a work up done to find out what went wrong. Upon arrival I was immediately referred to a neurologist who ordered an EEG and MRI before our first visit. I followed up a week or two later and to my surprise he told me that I definitely was suffering from seizure activity in my left temporal lobe. I had only had the two seizures at that point and they were brought on by the dental appointments. He told me to start medication but I refused because it just seemed odd to me. I thought it had to be something that was caused by the shot and if I just did not take that shot again I would not have a seizure. Fast forward about a month and I am sitting in class getting ready to have what I think is a panic attack so I leave before I disrupt class. On the way home I am not sure how I knew what was happening but I pulled over, called my husband, and told him I felt weird and that I thought I was about to have a seizure. Next thing I know my husband is shaking me and an ambulance is pulling up. I had had another seizure that left my entire left side of my body paralyzed. I was somewhat conscious and I could feel my body still twitching but I was unable to talk. Long story short I had several more seizures that evening and after the emergency room ruled out a stroke and heart issues they sent me home doped up on ativan. The following day I felt alright, but by nightfall I was having back to back seizures again. Went back to the hospital and was admitted for almost a week where I continued having several seizures per day. They did another EEG and found seizure activity in several regions of my brain but still nothing on an MRI. I was placed on Keppra and sent home after 48 hours observation on the meds. I went back to my Neurologist the day following my release because the Keppra was causing my blood pressure and pulse to drop dangerously low. Something the hospital neurologist had noted and cut my dose in half. My neurologist completely took me off the Keppra and placed me on klonopin. Very low dose. It seemed to be working for the past two months mostly. I had occasional breakthrough seizures but nothing severe. But last monday I felt is was less effective. By thursday I was having cluster seizures again. Saturday back in the ER because after the 10th one my husband called 911. I still have yet to be diagnosed officially with anything. Seizure Disorder or Epilepsy, my neurologist does not seem very interested in getting me in to adjust my medication or dose to control the seizures I am having now, and he will not even tell me what type of seizure it is I am having. I seem to mainly have one type although I have had a few that are completely different. Is this normal? Is this how things go when first being diagnosed? I know I cannot expect immediate answers, but it is so hard not knowing what the heck is going on. Right now I don't even officially have a name to call whatever is happening to me. My life is at a stand still because I can no longer drive and I live in fear that since I am home alone in the day one of these episodes will occur and I will either fall and hurt myself or that when it starts if I am alone it will not stop and no one will be here to do something to stop it. Any advice would be greatly appreciated.

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