Each Journey Is Unique
As with many great ideas, the eJourney initiative came from a conversation with leaders in our community. Board members Camila Coelho and Cynthia Hudson suggested a new approach to telling the stories behind the fight against epilepsy. Please join Camila, Cynthia and many, many more in this brave act of standing up against epilepsy. The eJourney is yours, and we want to share it far and wide.
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Don’t Let Epilepsy Hold You Back
I was born in 1992 and have lived with epilepsy for most of my life. I was 9 years old when I first started showing signs of epilepsy, but it wasn't...
Learning to Live with Epilepsy
My name is Robin Czarnota and my husband Mark, and I have been the parents of a child with epilepsy for the last 15 years. I am a women's services...
Using My Voice to Make a Difference
I am 31 years old and have been living with epilepsy for 21 years, but I have no known diagnosis for my epilepsy. I am an international adoptee who...
Epilepsy is Hard, but You’re Not Alone in the Journey
I grew up playing sports and living a very active lifestyle. I felt invincible through college - go Bears! - and into the start of my professional...
Epilepsy Made Me Stronger
My name is Andreina Perez, and I am a 27-year-old Venezuelan living in Los Angeles working as a filmmaker. I was first diagnosed with epilepsy at the...
It’s Important to Talk About Epilepsy
I had my first seizure at the age of 5, but I was not diagnosed with epilepsy until I was 8 years old. I had a tonic-clonic seizure that lasted over...
How Our Family Overcame Doubts with Epilepsy
My son, Rick, was diagnosed with epilepsy on September 15, 2015. After multiple medications failed to control his seizures and his seizures became...
From Denial to Helping Others
I was diagnosed with epilepsy when I was 14 years old after having a tonic-clonic seizure in my sleep. I had an EEG and the epileptologist looked me...
Don’t Ever Give Up
I grew up in Connecticut until I graduated high school. My whole life was spent in a small bubble consisting of my family, my church, and my private...
Living Confidently with Epilepsy
I've been living with epilepsy for 10 years. I'm currently halfway through medical school, and while my epilepsy has hindered me at times, it has...