Each Journey Is Unique
As with many great ideas, the eJourney initiative came from a conversation with leaders in our community. Board members Camila Coelho and Cynthia Hudson suggested a new approach to telling the stories behind the fight against epilepsy. Please join Camila, Cynthia and many, many more in this brave act of standing up against epilepsy. The eJourney is yours, and we want to share it far and wide.
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Shining a Light on SUDEP
My daughter, Emmery, was diagnosed with benign rolandic epilepsy in August 2016 when she was 7 years old after experiencing a grand mal (tonic-clonic)...
Honoring Jax Through Raising SUDEP Awareness
My 8-year-old grandson, Jax, had an infectious smile, gave the biggest and best hugs to everyone, and considered everyone he met family. He loved BIG...
Raising SUDEP Awareness to Honor Marquis
My son, Marquis Devon Chapman, started having seizures at the age of 5 months. It started off as febrile seizures and later turned into tonic-clonic...
Educate Yourself About SUDEP
My husband Renaldo had his first seizure when he was 24 years old. It was a Saturday morning in January, when his boss called me and told me an...
I Never Thought SUDEP Would Happen
My motherhood journey started when I had my son, Chris, at the age of 18. Christopher had his first seizure when he was 3 ½ years old, we were in a...
Remembering Joshua
In 1991, Joshua Daniel entered the world as a preemie with several medical issues. As his parents, we were grateful and thought we could handle it...
Honoring the Life of Brendan
I am a mother of four children and a mother who has lost a child. On November 28, 2017, my 19-year-old son Brendan lost his life to sudden unexpected...
Sharing My Story to Inspire Others
I am 22 years old and have been living with epilepsy for about five years. I recently graduated from Florida State University with a degree in...
Battling Dravet Syndrome
In early 2020 one of our twins, Travis, who we call T-Money or Money, was diagnosed with Dravet Syndrome, a rare childhood form of epilepsy. At the...
Yasa, Meet Epilepsy ... You Two Ought to Hate Each Other
I have always had the generalized idea of what epilepsy is just as anyone else would. Television series vividly showing people dramatically gasping...