Each Journey Is Unique
Your epilepsy story is powerful and can give people hope, empowerment, and safety. Join our community and share your story to talk about epilepsy, seizure safety, and the need to find cures. Make a difference and take action.
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![Read Caitlyn's story about how her epilepsy diagnosis motivated her to make a difference](/sites/default/files/styles/stories_285x200/public/2024-02/CaitlynJeffreyeJourneyBanner_1200x630.jpg?itok=--e6yZjr)
![](/sites/default/files/2022-03/Support-Group-Meeting.png)
Wednesday, February 07, 2024
Motivated to Make A Difference
I was diagnosed with benign rolandic epilepsy (BRE) about ten years ago when I had two documented tonic-clonic seizures. Not only was I diagnosed with...
![Read about how Sophia is spreading awareness about epilepsy and seizures](/sites/default/files/styles/stories_285x200/public/2024-01/SophiaCortezeJourneyWebBanner_1200x630.jpg?itok=d077B7OY)
![](/sites/default/files/2022-03/Support-Group-Meeting.png)
Wednesday, January 24, 2024
Overcoming Challenges To Make a Difference
My name is Sophia, and I am 20 years old. I have lived with epilepsy for 13 years, since I was diagnosed at 7 years old. My epilepsy is caused by a...
![Read Colby's eJourney about how support helped him overcome the challenges of living with epilepsy](/sites/default/files/styles/stories_285x200/public/2024-01/ColbyAguayoeJourneyBanner_1200x630.jpg?itok=tQmWSAfW)
![](/sites/default/files/2022-03/Support-Group-Meeting.png)
Monday, January 22, 2024
Finding My Strength in a Supportive Community
Epilepsy caused a significant turning point in my life. It all started when I was 13 years old. I had my very first seizure at almost midnight on my...
![Manny is sharing his family's story to raise awareness about epilepsy](/sites/default/files/styles/stories_285x200/public/2023-10/eJourneyBannerMannyA1200x630.jpg?itok=vWuOzRQC)
![](/sites/default/files/2022-03/Support-Group-Meeting.png)
Thursday, January 04, 2024
Compartiendo Nuestra Historia
Me diagnosticaron con epilepsia ya de adulto. Mi esposa y yo regresábamos de las Vegas y, aparentemente, tuve una crisis epiléptica en la carretera...
![Liliana is sharing her story about how her epilepsy diagnosis provided clarity](/sites/default/files/styles/stories_285x200/public/2023-12/Liliana%20AmbrizeJourneyWebBanner_1200x630.jpg?itok=UiA9wndn)
![](/sites/default/files/2022-03/Support-Group-Meeting.png)
Wednesday, January 03, 2024
Finding Clarity Through My Epilepsy Diagnosis
I was having seizures for approximately 10 years before I was diagnosed with epilepsy. It all began when I was in third grade. My mom noticed that I...
![Read about Matthew's journey with Dravet Syndrome](/sites/default/files/styles/stories_285x200/public/2023-12/Yvette%20Metzger%28Matthew%29eJourneyWebBanner_1200x630.jpg?itok=nUfw6Ag-)
![](/sites/default/files/2022-03/Support-Group-Meeting.png)
Tuesday, December 19, 2023
Matthew's Journey With Dravet Syndrome
Matthew was diagnosed with epilepsy at 7 months old. We were convinced it was a one-time seizure. His siblings witnessed it and said he looked like a...
![Read Evelyn's story about how she manages her life with epilepsy and seizures](/sites/default/files/styles/stories_285x200/public/2023-12/EvelynOdangoeJourneyWebBanner_1200x630.jpg?itok=NtjxQSef)
![](/sites/default/files/2022-03/Support-Group-Meeting.png)
Wednesday, December 13, 2023
Accepting the "New" Me
I was diagnosed with focal onset and generalized epilepsy with uncontrolled seizures in July of 2023 after having a seizure at work. The subsequent...
![Read Jordan’s story about why educating others about epilepsy is important](/sites/default/files/styles/stories_285x200/public/2023-11/JordanArmstrongeJourneyWebBanner_1200x630.jpg?itok=t8DJofhH)
![](/sites/default/files/2022-03/Support-Group-Meeting.png)
Thursday, November 30, 2023
Educating Others About Epilepsy
I was 22 years old when I was diagnosed with epilepsy. In January 2022, I woke up with what felt like a severely swollen tongue, blood on the pillow...
![Jeremiah is sharing his story about advocating for epilepsy awareness](/sites/default/files/styles/stories_285x200/public/2023-11/JeremiahStone_eJourneyWebBanner_1200x630.jpg?itok=W_sQs-q6)
![](/sites/default/files/2022-03/Support-Group-Meeting.png)
Tuesday, November 14, 2023
Advocating for Myself and Others With Epilepsy
In the fall of 2017, I did not know much about epilepsy. Sure, I had heard about it, but I had no idea what triggers were or that epilepsy affected so...
![Allie is sharing her journey with epilepsy and pregnancy](/sites/default/files/styles/stories_285x200/public/2023-11/AllieSkurskieJourneyWebBanner1200x630.jpg?itok=ChVqQ2Qv)
![](/sites/default/files/2022-03/Support-Group-Meeting.png)
Thursday, November 02, 2023
My Journey With Epilepsy and Pregnancy
I was diagnosed with atypical absence seizures as a child. I was having hundreds per day and not knowing. To my parents and teachers, it could be...