Each Journey Is Unique
Your epilepsy story is powerful and can give people hope, empowerment, and safety. Join our community and share your story to talk about epilepsy, seizure safety, and the need to find cures. Make a difference and take action.
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Thursday, May 23, 2024
Sharing Matthew’s Epilepsy Journey
My journey with epilepsy began in May of 2020. My son, Matthew, who was three years old at the time, was diagnosed with epilepsy at the height of the...
Tuesday, March 19, 2024
Honoring the Memory of Easton
My son Easton was born on August 6, 2019. He was a happy and healthy baby as far as we knew. In February 2020, however, Easton fainted in his high...
Wednesday, January 31, 2024
Sharing Parker's Epilepsy Journey
My daughter, Parker, is an active 5-year-old little girl. I am a teacher, and Parker and her sister, Paityn, always go to work with me during pre...
Thursday, January 04, 2024
Compartiendo Nuestra Historia
Me diagnosticaron con epilepsia ya de adulto. Mi esposa y yo regresábamos de las Vegas y, aparentemente, tuve una crisis epiléptica en la carretera...
Tuesday, December 19, 2023
Matthew's Journey With Dravet Syndrome
Matthew was diagnosed with epilepsy at 7 months old. We were convinced it was a one-time seizure. His siblings witnessed it and said he looked like a...
Tuesday, October 31, 2023
Sharing Our Stories to Create Awareness
I was diagnosed with epilepsy as an adult. My wife and I were driving home from Las Vegas, and apparently, I had experienced a seizure while in the...
Wednesday, September 27, 2023
Aiming To Overcome Through Shared Experiences
My name is Anusha Merchant. I am 10 years old and was diagnosed with absence seizures when I was 7. I was pretty excited when my first EEG occurred...
Wednesday, June 28, 2023
Community Support Is Important for Caregivers
I was playing with our son Edward one morning when I noticed his eye twitch. He was 7 months old at the time. It seemed off, so I called our...
Thursday, March 16, 2023
Fighting Epilepsy in Memory of Micayla
In 2005, my daughter Micayla was 4 years old. While talking to her, she went limp and appeared to have a seizure. I had never witnessed a seizure...
Connecting Epilepsy Families through Theater
Our family has been affected by epilepsy since my son had his first atypical tonic-clonic seizure when he was 6 months old. He was eventually...