Each Journey Is Unique
As with many great ideas, the eJourney initiative came from a conversation with leaders in our community. Board members Camila Coelho and Cynthia Hudson suggested a new approach to telling the stories behind the fight against epilepsy. Please join Camila, Cynthia and many, many more in this brave act of standing up against epilepsy. The eJourney is yours, and we want to share it far and wide.
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Sharing My Story to Make A Difference
I had my first and worst seizure when I was one and a half years old. I could not breathe for three minutes. I was flown by helicopter to a children’s...
Why It’s Important To Talk About SUDEP
Although learning about Sudden Unexpected Death in Epilepsy (SUDEP) can be overwhelming, it's important to talk to your healthcare team about your...
I Have Epilepsy, but It Doesn’t Have Me
I was diagnosed with epilepsy when I was 25 years old. I had a new job in a new city and my own apartment. I was hospitalized and experienced an...
Leave No Stone Unturned
I had trouble maintaining friendships or being “normal” from an early age. My first tonic-clonic seizure happened when I was 9 years old, and it was...
Brogran Family eJourney
Teresa never imagined her son Tommy would be impacted by seizures – or that they would continue his entire life. As his mother, she often wonders what...
Perspective Is Key
My life with epilepsy began in 2016. I was diagnosed with juvenile myoclonic epilepsy (JME) after having a serious tonic-clonic seizure. As the years...
Pursuing My Dreams Despite My Diagnosis
I was a toddler when I was diagnosed with epilepsy. I didn't know what epilepsy was until my neurologist later told me it was seizures. I was also...
Popovitch Family eJourney
John and Karen’s son John Paul had his first seizure when he was a child, but they were told he would grow out of them by puberty. While they knew...
Taking a Detour for Epilepsy
For 25-year-old former NASCAR driver Matt Tifft, taking a detour from his racing career due to an epilepsy diagnosis was not in the plan. Nevertheless...
How Epilepsy Changed My Life
I was diagnosed with epilepsy in June of 2021, at the height of a COVID-19 surge. I've never had a seizure before and didn't know much about them...