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Need advice for 10 month old daughter

Wed, 02/04/2015 - 20:09

My daughter has SCN1A gene that is mutated and I'm not sure if I know what that means. I asked the neurologist some questions but I think it's still over my head. They said she has GEFS+. What does that mean, does anyone have a child with this? Any advice for me, things that have worked for you? I'm lost and don't know where to start and what to do for her, as of now her seizures are not under control, she has eyebrow twitches everyday and arm jerks.

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