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Epilepsy surgery

Mon, 10/09/2017 - 21:48
Hello guys i just underwent my epilepsy surgery on sept 30 on my right temporal lobe surgeon said everything went a success I'm here sharing my story i was diagnosed with epilepsy when i was 13 im now 23 n had to undergo surgery due to the 3 meds not working i been home for about 3 days having a lil head pain since they had to operate but i was wondering when that will end. my vision, language, or memory doesn't seem to be affected but im little off balance but its coming back to normal i go back for my first follow up on oct 20 .but my main concern is how long this swelling will last and what will be the best activities exercises i can do to speed up my recovery and to be able to finally work n drive.thank you your help n support

Comments

I don't think there is

Submitted by RTLEmum on Fri, 2017-10-13 - 10:33
I don't think there is anything you can do to speed up recovery--except perhaps to make sure you slow down enough to recover. In other words, listen to your body. You just had brain surgery. Just because they discharged you does not mean you are healed. I don't think you should have pain by your follow up appointment. I don't think they allowed my child to exercise vigorously for a few months. We started our with short walks around the block gradually increasing. I know it must be frustrating, but take it easy. Definitely go out for some walks as you can tolerate it--I think that would help with recovery, but I would not be pushing yourself. The minute you are tired, go back and rest. I thought my child's scar looked a bit like Frankenstein for a long time, but it actually improved quite a bit over time. The scar was super puffy for awhile and it took a few months to be flat and not red. I think the scar took longer to heal than they told me it would. I would slowly go back to work, a few hours at first for a couple of weeks before you really go back into it. Just my two cents, but listen to your surgeon.

Hi There, I am new to this

Submitted by TracyH_590695c287fe5 on Wed, 2017-10-18 - 20:39
Hi There, I am new to this site so looking here and there. My daughter is schedule for TLE lobectomy surgery November 7th and I am terrified for her. She was dx 7 years ago and its been a long and difficult journey for her with many other complications which now has surgery as her best option for a quality of life. We understand the surgery, but not as much as what to expect after..I just want to here her say "Hi Mom" when she wakes up

Hi,My son is 16 and has right

Submitted by AuntMabel on Sun, 2017-10-29 - 13:42
Hi,My son is 16 and has right mesial temperol lobe sclerosis and temporal lobe epilepsy. I have been reading the stories on here so I feel like I have found my people.My neurologist wants my son to get a temporal lobectomy because he is telling me his life will improve dramatically as he is having 3-4 seizures per day and they will continue to worsen over time. My son wants the surgery but  am very worried, actually- I am terrified.I want to make sure the Doctor who performs the surgery is a doctor that has the best track record for performing this procedure.We live in Tennessee so LeBonhuer Childrens hospital epilepsy center has been recommended. I am hoping you all can tell me where you went and what was recommended and what kind of research you did to make sure you found the right place.I trust my nuerologist and I know the outcome of  more seizures can be equally harmful and limit a normal life. I am sure this was a concern for everyone who has faced this decision for themselves or their child and I am desperatley seeking feedback.Thanks,Laura

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