New to this, help!!

When I was 6 or 7 I appreciated the support I got from mom when I had the "funny feelings" that I could not understand.  They were very scary and I was glad mom was there.  Later (age 10 or so) I was so upset that my mother responded with such fear and attention that I started to do my best to hide my seizures.  I was trying to do my best to be calm and relax while she went too far, "Oh No!"  I imagine mothers have much more to be scared of than there children need to know about at that age.Maybe someone on this forum will be able to provide good advice and support.  But also click on Living With Epilepsy above and then look at Find Your Local Epilepsy Foundation.  I hope you can locate support from your nearest affiliate.

I think you need to view the anxiety as your issue, not hers. Sounds like too much if your worried about your child, I understand, I'm a parent of a medically complex child. If you are in crisis, you won't be able to take good care of your child so consider using that as motivation to get help for yourself separately. Talk to your primary care physician and find out what you need to do for yourself. Perhaps you only need some talk therapy but perhaps you need more. Your wording sounds worse than just needing basic support. If your health plan requires a referral for a psychiatrist, ask for one. It doesn't sound like your child has been fully evaluated by your neurology dept. Keep in mind that going to the emergency dept is not a good way to deal epilepsy unless the seizure isn't stopping (or clusters are not stopping). One way to reduce your anxiety is to learn more about your child, sorry but that usually takes TIME, both for a full evaluation and for more things to shake out over time as not all epilepsies are the same. Work through the nearest neurology specialist group. Appointment waits for neurology can take way longer than people realize (in the US), be friendly on the phone. If you ask to be put on a waiting list for an earlier appt, you may not get the doc you want. When you do see the neurologist, ask about how to contact them for emergencies, if they have a secure patient email system, how medication is started and stopped (it's increased to find the right dose or decreased slowly unless it's an emergency).Please understand that MOST seizures are not emergencies and stop on their own. If her seizures don't stop, you'll need to ask about emergency medication that you (or the school) can administer while waiting for EMTs. It sounds like you already understand the best treatment comes after they understand more. Do the 24 hour EEG as soon as possible. But know that it may not show much because she's already on medication.