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My son is new to epilepsy and I"M VERY NERVOUS
Thu, 04/06/2006 - 15:04Comments
Re: My son is new to epilepsy and I"M VERY NERVOUS
Submitted by cvargas on Tue, 2009-03-03 - 01:16
well how is your son doing now its been three years or so... I was gonna say to get a second opion cuz that is what my mom did with me and she basically got all kinds of books on the meds and the "illness" so that she could get at least a step a head or caught up with what was goin on at the time I was 13 doesnt even compare to what you are goin through but my did get second and third opions but she did start me on the meds cuz she didnt want to see the seizures. I couldnt tell you what she saw in me as far as how many I would have a day but I know that If I .....your son all of us didnt have you all ...MOMs and DADs well all I can say is ......thank you
:cvargas
well how is your son doing now its been three years or so... I was gonna say to get a second opion cuz that is what my mom did with me and she basically got all kinds of books on the meds and the "illness" so that she could get at least a step a head or caught up with what was goin on at the time I was 13 doesnt even compare to what you are goin through but my did get second and third opions but she did start me on the meds cuz she didnt want to see the seizures. I couldnt tell you what she saw in me as far as how many I would have a day but I know that If I .....your son all of us didnt have you all ...MOMs and DADs well all I can say is ......thank you
:cvargas
Re: My son is new to epilepsy and I"M VERY NERVOUS
Submitted by rikk on Mon, 2009-03-02 - 22:54
hi, best thing to do is educate yourself about all the drugs available for the treatment and the drug of choice for treatment, and the type of epilepsy. one thing i would consider is asking for a consult to a pediatric epiletologist. that is not just a second opinion. it is the most specialized person available. The end of the statement about "not doing that bad" must be put together with how long a period of time would it take for him to be injuried from the seizure. from an injury prospective is the major concern, the side effects of the medications is also of concern. there are treatments other than medications that can be discussed. ie, the ketogenic diet. check all the possiblilities. the one thing that is most important to always remember is that it is your son and no one knows him better than you. Don't be afraid to ask the questions to all the people you come in contact with. don't allow medical people to use their language. if you don't understand make them explain it until you do. It is not a question of your education, it is a case more than likely of their inability to speak english instead of medical. hang in there, take a deep breath and get the answers you need so that you can, using medical terms, make an informed(educated by the person giving you instructions or information) decision. hope it helps. rikk