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morning seizures, anybody go without meds?
Thu, 12/29/2005 - 02:52Topic: Parents & Caregivers
My five year old son started having seizures about 7 months ago. After a couple med trials, we have them somewhat stable (they aren't as long or severe). We have noticed that all of his seizures to date have been between 7 and 8 in the morning and there is a good chance that something in his wake cycle is triggering the seizure. The doc has suggested that if this continues that we might want to consider stopping the meds all together and allowing the seizures to happen and treat them as they come if they last longer than 10 minutes. He remarked that most use the meds to protect themselves during awake hours. I would love to get him off the trileptal, it makes him so cranky with each dose increase. Anybody have any thoughts/experience etc...to share? thanks
Comments
Re: Re: morning seizures, anybody go without meds?
Submitted by jjjlow3 on Mon, 2006-01-02 - 22:36
Wow, good luck with that... Our experience with the trileptal has been that he is really grouchy for the first few days after a dose increase but eventually stabilizes.
Question 4 u... The "spacy episode you described, are the doc calling these seizures? Do they know why he is vomiting at this point,is it related to coming off the meds? Just Curious.
Re: morning seizures, anybody go without meds?
Submitted by angel_lts on Wed, 2006-01-04 - 07:20
I take trileptal, it makes me get low sodium. And that causes seizures. SO I am in the middle of getting off of it now and switching to Lyrica.
That would be wonderful if you can do that. SO I guess he will give you diastat to treat each seizure for your son?
best of luck
Lisa
http://health.groups.yahoo.com/group/epilepsyapproach/
Re: morning seizures, anybody go without meds?
Submitted by 4luckystrikes13 on Mon, 2006-01-02 - 00:16
Thank you, my nine-year-old son was diagnosed in November. Immediately, he was also given Trileptal. Soon after, we noticed a distinct decline in his school work, self-esteem, and general attitude for the things he typically loves. He has had what I call 2 series of events. In January, he experienced spacy episodes, marked with an ashy appearance, nearly every day for two weeks. (However, the first real seizure we witnessed was grand mal.) Next, in July, for two days he had similar spells. That's it. I spoke with our family physician who suggested more testing and agreed with me in taking him off the meds. I am uncertain of the benefits, though. Today, is the first day he is completely off. We are still up after 1am, with vomiting. (But, no seizures to mention.)