How many different kinds of seizures can he have?

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My son often looks like he is staring off.I chalked it up to being tired.He has had myoclonic and grand mal.everyday he has dizzy spellswhere he loses his balance and twitches.Is that a seizure too?they seem to becoming more common with him,before it was just before a seizure ,now it seems he has them all day.We are seeing a specialist in Boston now and his nuerologist is really great.I am just worried sick that this may be progressive.he just seems to be getting worse.Is there anyone that I can talk to about my baby?

Comments

Re: How many different kinds of seizures can he have?

Submitted by angel_lts on Sat, 2006-08-05 - 08:25

Check out my support group. It looks at different approaches. Make sure his diet is changed and look into vitamins. Make sure he is not eating things with MSG or Aspartame. It can make a very big change in his life. There are all sorts of seizures. Actually there are forty different kinds. http://www.epilepsyontario.org/client/EO/EOWeb.nsf/web/Seizures talk with your doctor. Lisa http://health.groups.yahoo.com/group/epilepsyapproach/

Re: Re: How many different kinds of seizures can he have?

Submitted by stylzz on Sat, 2006-08-05 - 12:40

Thanxs Lisa.I was starting to wonder if anyone read my post.I will definately check it out this weekend.I know it is not his diet.He doesn't have any aspertame,and just natural sugars if any.As for Msg.I really don't think he has had that either,he only eats the foods I prepare.Thanxs again Is my support group on this site or the site you listed? -Beth

Re: Re: Re: How many different kinds of seizures can he have?

Submitted by gretchen1 on Sat, 2006-08-05 - 19:05

I have refractory epilepsy but my son at 7 weeks (now 30 years old!) was diagnosed with epilepsy after a grand mal or tonic/clonic way before me. The first year or maybe more were very hard. Mine, like his, and apprently your sons morphs or changes a lot. For instance I'll gain a new sz type, have it quite a bit and then some of them go silent. One type I was absolutely plagued with for the first 3 years I haven't had for now 5 years except for little tiny bouts. Anyway I started a thread about twitches. I don't know if they are the same as your sons but there is a URL posted by Spiz, if I remember right others gave good descriptions of their twitches. I absolutely hate them and I'd guess 75% of the time have to take 1 mg Ativan to get them stopped if they havan't in an hour. This description, Epilepticus Partialis (I think), states it lasts longer than an hour. Mine get started and lasts for hours and hours. I was reading some of the posts to my husband plus he read the URL about them which described me to a "T" and it was interesting to find out for first time his observation of when I get them and how he observes me physically and cognitively. A different conception than my own but a welcome viewpoint. The title of that thread I forgot. It was somewhat recent and had that word in the title - twitchies I think. This is so hard when a child, especially a very young child who doesn't communicate well yet due to age and I'm assuming that is your case when you said "baby", to endure yourself. Epilepsy effects the whole family. It has mine. And what Lisa said? It can save your emotional life to be in a support group. I am attending one right now throuogh Easter Seals in my area. I've started two also and it wasn't that hard. The first one I started was with two other women for "compromised children". That was 25 years ago and it's still going strong. Good luck, you're not alone and I suggest you post away and remember too, you're important, take care of you, be aware this is very hard on you and reach out for support. It is disheartening when no one answers your posts. It's happened to me, probably others. If that happens again? Change the title, restate it, make it more emphatic. Gretchen