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epilepsy alarms

Wed, 10/04/2006 - 21:10

Topic: Parents & Caregivers

Hi, My name is Shelly and I'm fairly new to this forum. I've replied to a couple about Keppra and now have a question....Looking for any one that has some information on the purchase of seizure alarms? We're considering buying one for our daughter Lillian who just recently started having seizures and aren't sure which one would be the best. Since the beginning her seizures were the type where she would just stare off to one side, once she wet herself, once she lost control of her bowels and vomitted, but then she had some without either until this last one where she had the full body convulsing. Do you get more than one? Where's the best place to purchase them? Any information is greatly appreciated. Thank You, Shelly

Comments

Re: epilepsy alarms

Submitted by FIONA GRANT on Thu, 2006-10-05 - 05:25

Hi Shelly Where do yo live? I live in Scotland and we were given a seizure alarm for my son from The Muir Maxwell Trust.This is a scottish charity which is based in Dalkeith Midlothian.Their e-mail address is info@muirmaxwelltrust.com.If you do not live in Scotland,i am sure if you contact them they may be able to tell you where you can purchase one.I hope this is helpful to you.

Re: epilepsy alarms

Submitted by billscott on Sun, 2008-03-16 - 11:52

did you ever find an alarm?

we are using the easylink alarm for 2+ years with great success... waiting to hear from them about distribution in US (it was not UL or FDA approved when we got ours).

bill.scott@nwlifts.com

did you ever find an alarm?

we are using the easylink alarm for 2+ years with great success... waiting to hear from them about distribution in US (it was not UL or FDA approved when we got ours).

bill.scott@nwlifts.com

Re: epilepsy alarms

Submitted by claudiavrtis on Mon, 2008-04-28 - 20:00

hi bill. i'm new to this forum/blog thing. but i've noticed your name on a few things i've found on the alarms. did you purchase yours through this earthlink? i tried seeing if it was approved through the fda, but couldn't find anything? do you have any updated info? thanks much- claudia

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