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Atonic Seizures and polymedication Therapy
Fri, 10/11/2019 - 11:13Topic: Parents & Caregivers
3 years son with Atonic Seizures. He is Currently on Topramate, Depekene and revitol.
He was diagnosed with Partial focal seizures at the age of 2 . Used levetracetum for 2 months but had increasing tonic-clonic seizures ( some converting into status ellipticus) .
Then levetracetum was tapered and Topramate was introduced (25/25mg daily) . Full Seizure control was achieved for 9 months. Everything was going well then he started showings sign of Atonic Seizures. Initially once a week to 3/4 episodes everyday.
Hi MirzaBaig,Thanks so much
Submitted by Anonymous on Fri, 2019-10-11 - 13:34
Hi MirzaBaig,Thanks so much for posting. We understand this can very scary and frustrating to experience. Treatment varies for each individual, so it’s important that you all continue to follow-up with your son's healthcare team and to determine what individual treatment plan is best for him and any changes in seizure types, frequency, moods, behaviors, sides effects & symptoms.For additional information regarding seizure medications and side effects, please visit: https://www.epilepsy.com/learn/treating-seizures-and-epilepsy/seizure-medication-list It is common for those who are in caretaker role to feel overwhelmed. It’s important to remember that you are not alone, and it is just as important to make sure you’re taking care of yourself as well.https://www.epilepsy.com/living-epilepsy/parents-and-caregivers Additionally, there are plenty of things you all can do to reduce these feelings and help to manage his epilepsy: Create a seizure response or action plan: https://www.epilepsy.com/living-epilepsy/toolbox/seizure-forms which is a helpful tool for those around your son to understand what to do if he has a seizure. Use a journal or diary, to track his seizures, record medical history, set reminders, manage medications, side effects, moods, and triggers. https://www.epilepsy.com/living-epilepsy/epilepsy-foundation-my-seizure-diary Review our seizure alert device factsheet with his doctor, to see if a seizure alert device is an option for him: https://www.epilepsy.com/sites/core/files/atoms/files/DAS100_Seizure_Alert_Devices_09-2018_FINAL2.pdfLearn how to live with seizures, potential risks and safety tips: https://www.epilepsy.com/learn/seizure-first-aid-and-safety/staying-safe It can be helpful to connect with other parents who care for those with epilepsy, to ask questions, share experiences, find & give support to each other, by visiting: https://www.epilepsy.com/living-epilepsy/parents-and-caregivers/parents-helping-parents and contact your local Epilepsy Foundation at: https://www.epilepsy.com/affiliates to find support groups, events, and programs in your community. Additionally, you may also contact our Epilepsy and Seizures 24/7 Helpline:1-800-332-1000 contactus@efa.org, where a trained information specialist can connect you to resources, provide referrals and additional support. epilepsy.com/helpline