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JME/ Jeavon's Syndrome, Feel Alone

Sun, 01/14/2018 - 21:39
I'm a freshman undergrad. I was diagnosed at age twelve and have had about eight or so grand mal seizures since then. Over the years, I've been picking up new symptoms. Scintillations in my visions that feel almost like visual seizures and make it hard to read, which is a big deal because I'm a music major. Muscle jerks. Eye fluttering. It all feels like it's been getting worse, and there's no one to really talk to about it up here that understands. In December, My entire dorm floor saw me have a seizure...they handled it fine, but I still feel more like I'm more of a burden or a flight risk in their minds and I never wanted to be known as that. I've also met a guy. He's really sweet, and one of the kindest souls I've met. But part of me feels guilty, like it isn't fair to date him and burden him with all of my issues. So I don't bring it up unless it's really got me down. I don't know what to do. I'm really alone and isolated. I need a support group. I go to college at the University of Oregon, in Eugene, Oregon. I'm eight hours away from home, and the stress is killing. I take Depakote (1000mg), citalopram (30mg), Clonazepam (.25 mg 3xd) Keppra (500 mg 2xd) Folic Acid (1 mg) and Zonisamide (150 mg)

Comments

Are you registered with the

Submitted by Misjoey101 on Sun, 2018-02-11 - 14:47
Are you registered with the Student Disability Center at U of Oregon?(I'm sure they have one). While, I admit it is hard to meet someone with epilepsy, when you register for the SDC for accommodations, you do meet other people with disabilities and they can relate to your social issues, controlling parents,occasional academic struggles,etc. 

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