Community Forum Archive

Hi, Thank you for posting and we understand your concerns. It’s important that you’re able to identify how you’re feeling and are able to recognize a change in symptoms after experiencing a seizure. It's also important that you review this further with your healthcare team and if you continue experience any changes in seizure types, frequency, side effects, behaviors and symptoms, to determine what individual treatment plan is best for you. Seizures can take on many different forms and affect different people in different ways, learn more here: https://www.epilepsy.com/learn/about-epilepsy-basics/what-happens-during-seizure A key part of managing seizures and epilepsy is knowing how it can affect a person's independence and day-to-day needs. Visit our independent living pages here: https://www.epilepsy.com/living-epilepsy/independent-living  to learn more about resources that are available & when help is needed. Managing your epilepsy can also help to lessen your risks, improve safety, and increase the chance of a successful college experience, both in and out of the classroom.https://www.epilepsy.com/learn/age-groups/youth/work-and-college/attending-college  Develop a personalized plan for managing your seizures and your learning needs:https://www.epilepsy.com/learn/managing-your-epilepsy Create a seizure response or action plan, which is a helpful tool for those close to you understand what do if you have a seizure:  https://www.epilepsy.com/living-epilepsy/toolbox/seizure-forms Track your seizures, record your medical history, medications, side effects, moods, or other personal experiences. using a diary: https://www.epilepsy.com/living-epilepsy/epilepsy-foundation-my-seizure-diaryLearn how to live with seizures, potential risks and safety tips: https://www.epilepsy.com/learn/seizure-first-aid-and-safety/staying-safe  Review our seizure alert device factsheet with your doctor to see if a seizure alert device is an option you:  https://www.epilepsy.com/sites/core/files/atoms/files/DAS100_Seizure_Alert_Devices_09-2018_FINAL2.pdf                                                                                                                               It’s also important to remember that you are not alone and one of the most important things to help you live with epilepsy is to find a support network. Learn more about your community support resources, here: https://www.epilepsy.com/learn/challenges-epilepsy/social-concerns Additionally, you may always to contact our 24/7 Helpline, where trained information specialists are available to answer your questions, offer help, hope, support, guidance, and access to national and local resources.1-800-332-1000, or contactus@efa.org. epilepsy.com/helpline   

I also have JME. It’s a giant suck fest and usually takes anywhere from two weeks to a month to get back to my old self after a tonic clonic seizure. The analogy I always give people is your brain is a computer. A seizure is  a power surge that shuts it down incorrectly and gives it the blue screen of death. Sometimes it comes right back up, but usually it takes a while to get all the systems operable again.