Community Forum Archive

The Epilepsy Community Forums are closed, and the information is archived. The content in this section may not be current or apply to all situations. In addition, forum questions and responses include information and content that has been generated by epilepsy community members. This content is not moderated. The information on these pages should not be substituted for medical advice from a healthcare provider. Experiences with epilepsy can vary greatly on an individual basis. Please contact your doctor or medical team if you have any questions about your situation. For more information, learn about epilepsy or visit our resources section.

Seizures correlating with menstrual cycle and solutions

Wed, 05/24/2017 - 22:19
Hey everyone! I have browsed this site many times but this is the first I have posted in your forum. Quick summery of my epilepsy experience: I was diagnosed with epilepsy at age 11 (right around puberty) paired with partial complex seizures. I am now 27 and although I was stable on medication for a while (approx 1 every 6 months), the past few years I have begun to have them more often, now up to 1-2 seizures every month. For a while now I have been tracking them along with my menstrual cycle, and they have appeared to be very consistent that I have one right around ovulation and/or my period. I am certain that is currently my main triggor. I tried some hormonal therapy (progesterone supplement) for a few months but that didn't seem to do anything. Besides trying various medications (including trileptol, keppra, lamotrigine and fycompa) I have also tried the MAD diet, and received a VNS implant a couple years ago, all of which have seemed to fail. Anyways, I was just wondering if anyone else out there has had seizures triggered around hormonal cycle and what you may have tried that has been successful. I appreciate anyone's input! Thank you! Heidi

Comments

I have catamenial epilepsy

Submitted by Trillian on Sat, 2017-09-30 - 17:14
I have catamenial epilepsy and seizures only when I ovulate. I was seizure free for 15 years whe I had progesterone implants for contraception. I had a problem when I had it removed to have kids though, tonic clonic ones, so that’s an arse! 

BTW, I went off the valproic

Submitted by murr88 on Tue, 2017-10-10 - 12:47
BTW, I went off the valproic after 5 years and for 3 years I didn't have seizures. I got pregnant and gave a birth, taking magne b6. Could you please give me the links to the studies about the epilepsy and magnesium?After pregnancy I can't take it, it is bad for my belly, but I take b-group vitamins.Topicstarter, my menstrual cycle has always been irregular, but it is completely brocen after I started Topamax. And it is getting worse and worse. 

Hi ya i get more seizures

Submitted by Zaca5 on Sun, 2018-03-25 - 15:42
Hi ya i get more seizures around my  menstural as well thought it was just me, I don't have answers at this point but will be talking to my neurologist 

Sign Up for Emails

Stay up to date with the latest epilepsy news, stories from the community, and more.