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Hormones and seizures

Thu, 04/19/2018 - 15:59
Hi everyone, I'm new to this site so I apologize if this has been discussed already. I've been dealing with seizures for about 3.5 years now. My very first one was when our first child was 8mo old. I was breastfeeding still and had not started having periods again yet. I had another 6wks later and then my periods started back about a month after that and the seizures stopped (I had not started taking medication). I got pregnant again a few months later and had a seizure around 5wks so I was started on Keppra and had a miscarriage a few weeks later (blighted ovum). I have been on Keppra since and take 750mg twice a day. I got pregnant again and had our child May 2017. I had another seizure on Feb 24 & another yesterday (6.5wk apart). The seizures seem to be following a pattern in my late post partum period and that I have catamenial epilepsy. We believe all my seizures are hormonal related. Our regular neurologist wasn't very helpful in looking into this possibility, so we have begun working with a neuroendocrinologist. I'm just wondering if other women have had similar issues and patterns with seizures and fluctuating hormone levels. Please share your experiences and if you've found anything that works!! Thank you!

Comments

I've been wondering the same

Submitted by lcitraro on Thu, 2018-11-08 - 13:20
I've been wondering the same thing! I asked my neurologist and GYN and they both told me that it's very common for women with epilepsy to experience more seizures or symptoms during our period because of the elevated hormones. I'm not any birth control, because my GYN told me that the the regular pill with counteract the Keppra. I take 1500mg Keppra twice a day. 

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