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My Daughter and college

Mon, 08/16/2010 - 13:08
My daughter will be going away to college next week and has partial complex seizures at least three times a day.  The school knows, the counselor knows, her roomate knows, the teachers know, etc..., the I think I have them all covered at this point.  I am really worried.  Do you have any advice for me?

Comments

Re: My Daughter and college

Submitted by wntr89 on Thu, 2010-08-19 - 17:18
Thank you so much for your advice.  We have spoken to the counselor and the work program manager and her floor aids and she has emailed her teachers to let them know as well.  When she has a seizure, she stops and stares for about 5 or 6 seconds and then does goofy stuff for another 30 - 40 seconds before she comes back.  Sometimes she will walk away or lay down or pick at her clothes.  Sometimes, if she is walking, she will stumble and fall or drop what she has in her hands, etc... I have talked to her about other drugs and alcohol and she seems to be aware of the fact that those could really hurt her, especially with all the medications she currently takes for these seizures.  We have also had her refill her meds for a couple of months now, in preparation of her going away to college.  I hope it will all work out!

Re: My Daughter and college

Submitted by snowwoman on Sat, 2010-08-21 - 10:51

Hi wntr89:

Sounds like your daughter is all set! I have CPS as well, so they say. Was diagnosed in university actually, and I am going into my final year now. I too stare and have been known to drive profs crazy when I 'ignore' them, but thanks to the frustration of one prof, was finally diagnosed when one well, 'smacked' my arm. She then sent me to bed (ha ha!).

Keep profs in the loop. I really hate doing it but I understand I need to. Because if I pass out again (my head went smack on the table in the middle of class), I would have saved myself the hassle of having to explain to paramedics what I don't remember happening. I still don't know if the passing out and the seizures are related, but my instructions to the profs are the same: if I am 'unconscious, whether starring or on the table, ignore, unless I just don't come out of it.

Your daughter's way ahead of me, so I am confident she'll be fine. :)

Chin up!

Hi wntr89:

Sounds like your daughter is all set! I have CPS as well, so they say. Was diagnosed in university actually, and I am going into my final year now. I too stare and have been known to drive profs crazy when I 'ignore' them, but thanks to the frustration of one prof, was finally diagnosed when one well, 'smacked' my arm. She then sent me to bed (ha ha!).

Keep profs in the loop. I really hate doing it but I understand I need to. Because if I pass out again (my head went smack on the table in the middle of class), I would have saved myself the hassle of having to explain to paramedics what I don't remember happening. I still don't know if the passing out and the seizures are related, but my instructions to the profs are the same: if I am 'unconscious, whether starring or on the table, ignore, unless I just don't come out of it.

Your daughter's way ahead of me, so I am confident she'll be fine. :)

Chin up!

Re: My Daughter and college

Submitted by miriam_hospital123 on Tue, 2010-08-17 - 23:47

I can only imagine your worry. You really need to have a talk with your daughter and advice her of what she should do at the first sign of the attack. She needs to cooperate with you on this for you can't keep her on your house.

- Miriam (<a href="hospitals123.com">hospitals</a>)"

I can only imagine your worry. You really need to have a talk with your daughter and advice her of what she should do at the first sign of the attack. She needs to cooperate with you on this for you can't keep her on your house.

- Miriam (<a href="hospitals123.com">hospitals</a>)"

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