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surgery at 40

Tue, 12/07/2004 - 01:55
I was diagnosed with grand mal seizures at the age of 13. I was really scared about the hole situation at hand, i have heard that there are surgerys that can help, but not sure if it is right for me...I have been seizure free for almost 5yrs now. I also found out that the medication that i take causes weight gain and liver damage. If there is anyone out there that has had any of the surgerys that they perform on seizure's can you please write back...... thanks 4 your time

Comments

Re: RE: RE: surgery at 40

Submitted by BAU on Mon, 2006-01-16 - 14:17
Surgery at 48? I am 48 years old and have been having seizures since I was 18 months old. I have been diagnosed with epilepsy and have been on medication for close to 15 years; however, all my medication I've been on (three different medicines at this time) have never had complete control of my disorder. I am a court reporter and have to be 100% alert and am usually working 24/7. Last month I awoke to find myself in my new car with my airbags deployed after hitting a brick mailbox in my neighborhood. Thank God it was the mailbox! At that time I quit driving (my husband's wishes) and contacted my doctor. They are now doing tests on me and preparing me for surgery. I do have left temporal lobe scarring and have had all the tests they plan to do except for the neuropsychcological 8-hour test and the WADA, which are scheduled for April of 2006. If there is anyone out there that could share the after-effects of their surgery with me, I would really appreciate that! I am a workaholic and would really like to get back to my job ASAP - with an excellent memory and the ability to remember all that I remember now, for my worklife, that is. My memory is already a problem due to my medication. However, it has had no effect YET on my working life. BAU

Re: Re: RE: RE: surgery at 40

Submitted by Amy on Mon, 2006-01-16 - 19:27
Hi BAU I had a left temporal lobectomy on 11/15/05 - I am 41 years old. I have been treated for siezures for about 12 years. We were not able to find any meds that kept me siezure free. Over the past year I had completed various testing which included a week long hospital stay waiting for siezure occurrences to pinpoint the area which was damaged, the WADA, various CAT scans, MRIs and the 8 hour nueropsychological testing. I took the time to think about the risks, research the surgery, the results of the surgery, etc. after I was told that I was a good candidate for the surgery. At this point I do not have any regrets to having the surgery. The surgery lasted approx. 6 hours, I was out of the hospital two days after the surgery, was on mild pain meds for a week after, then back to work on a PT basis three weeks after the surgery, then full time four weeks after the surgery. I work in an office and I deal with a lot of math calculations, phone conversations with attorneys and individuals regading domestic situations. At this time I can't say I notice a big change in any direction...specifically of my memory being better or worse. I understand better short term memory could take a while, but I can say that I don't have an exclusive bad memory problem which limited my lifestyle. I am a single Mom of an 11 year old daughter and have local family, friends and a generous employer that have been very supportive and helpful. I feel that the support was a big help in deciding to go ahead with the surgery. Two days after my surgery my Mother entered the hospital and three days later was diagnosed with cancer and given a six month life expectancy. I can say that my Mom's diagnosis put a lot in perspective with the feeling that the temporal lobectomy might have been a bad choice that I made... but it is a surgery that has occurred and has been successful many times... which compared to treatment of the type of cancer that my Mom has it has not been successful for many years. My point is that if your neurologist is suggesting that you are a good candidate for the surgery, you should trust the doctor's knowledge and experience with the results of the surgery based on your situation. The biggest negative that I can point out is the problem with my driver's license being suspended. I know my state has laws requiring the neurologist have your license suspended through the state....but I can understand why, but it can be frustrating! Best wishes for making a choice that satisfies your thoughts. Amy

Re: Re: Re: RE: RE: surgery at 40

Submitted by BAU on Thu, 2006-01-19 - 17:32
Amy, Thank you for your response regarding your surgery. I was wondering if you were still on any medication and, if so, what and how much you were still taking. I was also wondering how much of your hair was shaved, if any, before the surgery. Vanity on my part! BAU

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