surgery at 40

RE: RE: RE: RE: RE: surgery at 40

Submitted by Yakota on Mon, 2005-05-23 - 13:03

Lisa. Hi. I hope my brain will work to get this out. I am going to have to scrap today (seizure,) and go back to bed. No. I too would not tell or advise anyone to stop taking their AEDs without first consulting a neuro. In the past I have been on many different AEDs, sometimes three at a time. I also have the vns. It was turned off in Oct. of 04. Depending on what happens with seizure between now and the end of June will determine if I have it turned back on. Plus I am going through menopause which has made my brain have more seizure. It has been almost a year since I had any AEDs. I had the vns on for about a year and a half. It is hard to say if the seizure that I do have is a result of turning it off? But I have a hard time when I consider going back to see a neuro who says my symptoms are in my head. Excuse me but no... dah!!! I have abnormal eegs (looks like status epilepticus,) with blurred vision, a tingling tongue (sort of numb,) and a sensation like I am falling, all at the same time, and have been diagnosed with TLE, partial complex seizure. As a child I had the starring spells and whooper night seizure. And now because I do everything but convulse: Prior to the vns I had full blown clonic-tonic seizure. The doctors are dumbfounded at a loss of what to do to help? If I do decide to go see a physician it will be a specialist at Mayo Clinic. The last neuro I saw lacked in professional knowledge and didn't respect me as his equal (major mistake.) If I knew of a nuero who was trustworthy and knowledgable then I might consider a profession medical oppinon. But when you have lived through what I have it seems best to observe those in the medical field from a far distance. LOL. Anyone else having these symptoms but not experiencing seizure to peak convulsion? I would like to know if anyone else has this same problem? Anyone have the vns on for any length of time, then have it turned off, not take any AEDs, and are experiencing seizure but not to convulsion? As a person with a pee-on medical degree (med asssit) I personally would find my case a challenge. I have yet to find a neuro with my same sentiments. Honestly I don't think I am ready to put my trust into a medical professional again. Treating E with natural supplements and therapies, I seem to be doing alright. At least I don't have the worry of someone making a wrong diagnosis!!! Sorry this is so winded Lisa. Did I answer all of your questions? A good Monday to ya and everybody else out there. Blessings. Linda.