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Neuropace aka RNS upcoming surgery

Fri, 01/17/2020 - 16:34
My adult sister has an AVM deep in her left temporal lobe so removal surgery is too risky - if the surgery is not successful, she may lose ability to speak or understand speech! She is going to have neuropace implanted in a few weeks. I have been reading here that some people experienced MORE seizures, one person had an infected lead, most have to get the implant "adjusted" every so often? For those who have the RNS surgery - what do you think? 1. How long have you had it? 2. Are you better off, same or worse? 3. Did you have to remove it? Thank you so much in advance for your comments!

Comments

Cathy,No problem.  I am on

Submitted by birdman on Fri, 2020-01-24 - 08:50
Cathy,No problem.  I am on Medicare and Michigan Medicaid which are combined in a program called Mi Health Link where insurance companies combine and manage the two government insurances.  So the company that I'm using to manage my insurance is Aetna.  Aetna is the company who issued the denials on my surgery.Mike

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