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Long Term Effects of Temporal Lobectomy
Fri, 05/29/2009 - 21:33Comments
Hello Lisa
Submitted by Kaleem on Tue, 2018-01-23 - 17:33
Re: Long Term Effects of Temporal Lobectomy
Submitted by bella0809 on Wed, 2009-07-22 - 22:17
Hi qwerty.
I had the lobectomy for left temporal lobe in December 2005 by Dr. Doyle. Maybe we had the same doc? It's been amazing to be sz free, as I'd had them since I was 8 years old. I hated what the meds were doing and I definitely began to feel a decline in intelligence, so I finally bit the bullet and got the surgery. I'm down to 75 mg of Lamictal a day, but don't think I'm going to go lower. guess I can live with it. I have a scar across my forehead that most people think is a wrinkle. It's where I was clamped to the table. I had it taped, so I saw it when I watched the video. I have long hair, so you can't see the scar, but if I pull it back and point to it, you could see it. I don't like the feeling of the screw occasionally and I think the cause headaches when the weather changes, but I'll take it in exchange for no more seizures.
Ann
Hi qwerty.
I had the lobectomy for left temporal lobe in December 2005 by Dr. Doyle. Maybe we had the same doc? It's been amazing to be sz free, as I'd had them since I was 8 years old. I hated what the meds were doing and I definitely began to feel a decline in intelligence, so I finally bit the bullet and got the surgery. I'm down to 75 mg of Lamictal a day, but don't think I'm going to go lower. guess I can live with it. I have a scar across my forehead that most people think is a wrinkle. It's where I was clamped to the table. I had it taped, so I saw it when I watched the video. I have long hair, so you can't see the scar, but if I pull it back and point to it, you could see it. I don't like the feeling of the screw occasionally and I think the cause headaches when the weather changes, but I'll take it in exchange for no more seizures.
Ann
Re: Long Term Effects of Temporal Lobectomy
Submitted by lisam11463 on Sun, 2009-06-14 - 19:06
"Changing the misconceptions society has about epilepsy, by educating one person at a time"....Lisa-Marie Kinsman Author of "Free at Last, My Lifetime Battle to Overcome Epilepsy".
Hello qwerty, I am so thrilled to hear that the surgery worked for you! I had left mesial temporal lobectomy done fourteen and a half years ago and have been completely seizure-free ever since.
In answer to your questions, no my forehead is not uneven. The only "bumps" that I have would be my 10" scar. My scar is still to this day extremely sensitive if I rub my head the wrong way, and my left temple is still a bit numb like a slight case of frostbite. But I can live with that. It sure beats me having hundreds upon hundreds of seizures every single month. I owe my life to the wonderful doctors and nurses at SUNY Upstate Medical Center in Syracuse, New York.
I am still on Tegretol XR and will be for the rest of my life. My night time dosage was cut in half about 7 years ago, I went from 400mg at night to 200mg. I was told by two top notch Epileptologists that for me to completely be weaned off of Tegretol XR, I would have to surrender my driver's license for the six months it would take to completely wean me. I was also told that there was a 30-40% chance that I could have a few seizures while weaning or my seizures could come back full force like before my surgery. That's not a chance I am willing to take. I would much rather make the drug company rich than to ever risk losing my wonderful freedom.
I got my driver's license at the age of 33 for the first time in my life and I just LOVE it! I wouldn't give up my driver's license for all the money on earth. It's the most wonderful feeling in the world not to be dependent upon anyone anymore.
I've now been an epilepsy advocate and counselor online since 1995, and although it is strictly volunteer I am always so thrilled to hear when someone else becomes seizure-free like myself. That right there is the best way in the world I can think of getting reimbursed for the thousands of hours I put in each year to help others. To hear someone else say they are glad they had the surgery done and are now seizure free is worth its weight in gold to me.
I want to wish you many many more years of being seizure-free and all the happiness in the world.
Lisa-Marie
"Changing the misconceptions society has about epilepsy, by educating one person at a time"....Lisa-Marie Kinsman Author of "Free at Last, My Lifetime Battle to Overcome Epilepsy".
Hello qwerty, I am so thrilled to hear that the surgery worked for you! I had left mesial temporal lobectomy done fourteen and a half years ago and have been completely seizure-free ever since.
In answer to your questions, no my forehead is not uneven. The only "bumps" that I have would be my 10" scar. My scar is still to this day extremely sensitive if I rub my head the wrong way, and my left temple is still a bit numb like a slight case of frostbite. But I can live with that. It sure beats me having hundreds upon hundreds of seizures every single month. I owe my life to the wonderful doctors and nurses at SUNY Upstate Medical Center in Syracuse, New York.
I am still on Tegretol XR and will be for the rest of my life. My night time dosage was cut in half about 7 years ago, I went from 400mg at night to 200mg. I was told by two top notch Epileptologists that for me to completely be weaned off of Tegretol XR, I would have to surrender my driver's license for the six months it would take to completely wean me. I was also told that there was a 30-40% chance that I could have a few seizures while weaning or my seizures could come back full force like before my surgery. That's not a chance I am willing to take. I would much rather make the drug company rich than to ever risk losing my wonderful freedom.
I got my driver's license at the age of 33 for the first time in my life and I just LOVE it! I wouldn't give up my driver's license for all the money on earth. It's the most wonderful feeling in the world not to be dependent upon anyone anymore.
I've now been an epilepsy advocate and counselor online since 1995, and although it is strictly volunteer I am always so thrilled to hear when someone else becomes seizure-free like myself. That right there is the best way in the world I can think of getting reimbursed for the thousands of hours I put in each year to help others. To hear someone else say they are glad they had the surgery done and are now seizure free is worth its weight in gold to me.
I want to wish you many many more years of being seizure-free and all the happiness in the world.
Lisa-Marie